NY State Sen. Hinchey to Host Virtual Event for World FTD Awareness Week

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New York State Senator Michelle Hinchey is hosting a virtual information session in partnership with AFTD to help raise FTD awareness during World FTD Awareness Week.

The information session, happening via Facebook Live on Oct. 1 at 11:00 a.m. EDT, will offer FTD education to the public and resources for families impacted by FTD.

Sen. Hinchey recently sponsored a resolution, since adopted by the legislature, designating Sept. 26 through Oct. 3 as FTD Awareness Week in New York.

โ€œThe fight to bring FTD to the forefront of public awareness and to our policy discussions in the State Legislature is a personal one for me,โ€ Sen. Hinchey said in a press release. โ€œAnyone who has had to watch a family member suffer through this degenerative brain disease understands the heartbreak, the frustration of misdiagnosis, the challenge of finding affordable long-term care, and the need for quality informational resources to help prepare for every stage of the disease.โ€

Sen Hincheyโ€™s father, former U.S. Congressman Maurice Hinchey, was diagnosed with primary progressive aphasia (PPA); he died in November 2017.

AFTD Advocacy Manager Matt Sharp will join Sen. Hinchey for this virtual session to โ€œ[bring] awareness of the complex and devastating challenges brought on by FTD,โ€ he said in the press release.

Read the full press release here.

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