Volunteer With Us

Explore Volunteering with AFTD

Or call us at 866-507-7222 and ask to speak with a Volunteer Engagement Coordinator.

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See our current Volunteer Opportunities

Do you want to explore becoming an AFTD Volunteer?

Follow 3 simple steps!

  1. Attend an Information Session
    Sign up here for a live, volunteer-led session (roughly 60 minutes) to learn more about AFTD and the various volunteer opportunities available – and meet others affected by FTD.
  2. Submit a Volunteer Application
    If you decide to move forward after the session, complete the online volunteer application form, which would have been emailed to you.
  3. Connect with a Volunteer Engagement Coordinator
    An AFTD Volunteer Engagement Coordinator will reach out within one business day to schedule a Zoom or phone meeting to finalize your application and provide training and next steps.

Interested in Advocacy or Fundraising Only?
Skip the earlier steps and jump in here:

“I just want my wife’s death to FTD to mean something, and I’d like to give back so more people understand this disease.”

Kenneth “K.C.” McCullough, AFTD Volunteer, Virginia

“I couldn’t defeat FTD but I can walk beside others as they navigate the journey and that is powerful. My life is richer because of my Support Group family.”

Marian Grems, Support Group Volunteer, Ohio

“I volunteer because it’s so important to spread awareness so that people who have the disease and their caregivers get the support they need. When we do find a cure, the public will know what this disease is and they can avail themselves of that.”

Susan Eissler, AFTD Ambassador, Central Texas

“I volunteer and network with other families experiencing FTD because it is therapeutic for me, a coping mechanism for my grief, if you will. I know then that I’m not alone in this.”

Brian Fox, AFTD Volunteer, Nebraska

“It is, truly, very fulfilling to be a part of AFTD. What a terrific organization that allows many to volunteer in a meaningful way.”

Sandy Cannon, AFTD Volunteer

"I am honored by the trust others put in me when sharing their fears, challenges, and small victories. Volunteering for AFTD has given me the opportunity to pay it forward."

Marian Grems, AFTD Support Group Volunteer

Connect with AFTD's Volunteer Coordinators

Contact them at volunteer@theaftd.org

Hannah Gruen Headshot - square

Hannah Gruen

Carrie Johnson

Carrie Johnson

Or call us at 866-507-7222 and ask to speak with a Volunteer Engagement Coordinator.