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Amplifying Your Voice in FTD Research: Why Am I Asked So Many Questions?

When studying FTD, researchers ask a lot of questions. Research participants may find themselves thinking, “Why do you need to know all this information?” This Perspectives in FTD Research webinar, presented by AFTD and the FTD Disorders Registry, will explain why this information is gathered and how it is used by researchers seeking effective FTD…

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Perspectives in FTD Research Webinar: Clinical Trials and Beyond — What Do I Need to Know about Types of FTD Research?

When people choose to participate in FTD research, scientists are able to gain a clearer understanding of this disease as they seek effective treatments. Taking that first step can be overwhelming. This Perspectives in FTD Research webinar, presented jointly by AFTD and the FTD Disorders Registry, aims to explain FTD research by describing the different…

AFTD Webinar – Brain Donations: Who, What, Where, When, and Why?

Brain donation is crucial in advancing the science of FTD. But navigating the donation process can be complicated. How does a person donate their brain, and to whom? When is this decision best made? And why is the brain such an important resource for FTD researchers? In this Perspectives in Research Webinar, presented jointly by…

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Monthly Care Partner Training: Frontotemporal Dementia

Mazawey Education and Support Center 3955 Pender Drive, Suite 100, Fairfax, VA, United States

AFTD Director of Support & Education Esther Kane, MSN, RN-CDP, will be speaking about FTD at the September edition of Insight Memory Care Center's Monthly Care Partner Training series. Visit the Insight Memory Care Center's website to register for this free hybrid event: Limited in-person attendance is available, or you can join virtually via Zoom.

Familial Conference: Uncovering the Genetics of FTD/ALS

The Penn FTD Center has opened registration for the fourth annual familial conference , Uncovering the Genetics of FTD/ALS, on February 21, 2024, from 3:00-6:00 PM. This virtual event has been designed to address the unique challenges that can arise from familial diseases like FTD and ALS. During the conference, you will have the opportunity to hear from…

Understanding Dementia with a Focus on Alzheimer’s & FTD

Zoom Video Conference

Join AFTD Ambassador Dawn O'Gara and Julie McMurray, MA, LMHC, CDP, of the Alzheimer's Association for this virtual presentation on FTD and Alzheimer's disease. Attendees will learn about the signs and symptoms of FTD and Alzheimer's and the resources available through AFTD and the Alzheimer's association. View this downloadable pdf for more information. 

Coolmud Launch

Sisters Linnea and Erika Lehmkuhl are launching their project "Coolmud" in honor of their father, Jack, with a special pre-order taking place December 3rd through the 15th. After Jack was diagnosed with FTD in 2022 (having shown symptoms since 2015), his family knew he needed a creative outlet to express his "new language", so they…

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Virtual Meet & Greet for MT, WY, ND, and SD

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Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in Montana, Wyoming, North Dakota, and South Dakota on Saturday, January 25, starting at 11:00 a.m. MT. RSVP for this event by emailing event host Susan Meagher at suselenae@gmail.com. To learn more, download this flyer.

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BRI Care Consultation Learning Collaborative – Understanding FTD: Diagnosis, Support and Resources for Patients and Caregivers

Zoom

Join AFTD Director of Support and Education Esther Kane, MSN, RN-CDP for a free informative session highlighting the signs and symptoms of FTD, how it is diagnosed, and what resources are available for families on the FTD journey, presented by the Benjamin Rose Institute on Aging. A Q&A session will be held to allow attendees…