Bruce Willis & Frontotemporal Dementia (FTD):

What You Need to Know

Bruce Willis & Frontotemporal Dementia (FTD):

What You Need to Know

The family of Bruce Willis has announced that he has been diagnosed with frontotemporal dementia (FTD). 

The family announced Mr. Willis’s retirement in March 2022, citing an initial diagnosis of aphasia. In a recent statement issued on social media and through AFTD, the family reported that his symptoms have progressed and are no longer limited to challenges with communication, leading to a diagnosis of FTD.  

The most common dementia for people under 60, FTD can cause challenges in communication, as well as changes to one’s behavior, personality, or movement.  

FTD, also known as frontotemporal degeneration, represents a group of brain disorders affecting the frontal and/or temporal lobes of the brain. Often, a range of new symptoms emerges as the disease progresses.  

There are currently no treatments that slow or stop FTD. There is no cure, and no way to prevent its onset. Average life expectancy is 7 to 13 years after the start of symptoms.  

Bruce Willis, 67, is one of the most beloved and relatable actors of all time, and his contributions to the screen have changed so many lives. Our hearts go out to the Willis family as they go public with this important news.  

If you are learning about AFTD for the first time: our mission is to improve quality of life of people affected by FTD, and drive research to a cure. Our work is community-driven.  

If you are moved by this story, here are some ways to take action: 

  • Inform yourself and others about FTD and AFTD’s work to address it. Our HelpLine staff, reachable via [email protected], can be an invaluable resource. 
  • Sign up with AFTD to stay on top of the latest FTD resources, news, and events.
  • Get connected to resources and local support groups. 
  • Share a message of hope and support with the Willis family via Instagram using the hashtags #SupportBruceWillisFTD and #EveryFTDStoryCounts.
  • Use this template to share the announcement with your own networks. 
  • Reach out to your local press, using these tips and talking points. 
  • Donate any amount to support AFTD’s mission. Your support can help families impacted by FTD, and bring hope for a future free of this disease. 

Every FTD story counts in bringing global awareness of this disease. The Willis family’s announcement is likely to change how FTD is discussed in the U.S. and around the world.

By working together as a community, we can #endFTD. 

Media inquiries: For any media questions about this announcement, please visit our Newsroom, or email [email protected]