News & Events
Bobby Kimball, Toto’s Original Lead Singer, Living with FTD
The FTD community extends its heartfelt support to Bobby Kimball, original lead vocalist of the band Toto, and his family as the world learns more about the singer’s journey with…
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Understanding and Responding to FTD Behaviors
Behavioral symptoms associated with FTD often present significant challenges, not only for the individual diagnosed but also for their care partners. FTD behaviors, such as disinhibition, apathy, compulsivity, or loss…
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AFTD Grantee Leads Basic Science Study Exploring Role of Protein in Tau-Based Disorders like CBD
A recent study examines the role of chromogranin A (CgA) in disorders caused by dysfunctional tau protein. The study expands our foundational knowledge of these forms of FTD and opens…
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Pave the Path Forward This Giving Tuesday
AFTD Persons with FTD Advisory Council member Sandy Howe and her husband, Dirk, are sharing their story this Giving Tuesday to raise awareness about FTD and provide support for other…
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Love Will End FTD: Katie Brandt on Caregiving, Loss, and Leading Change
Katie Brandt, an active and longtime AFTD volunteer, was interviewed on the podcast Navigating the World With Your Aging Loved One. She spoke with host Nicole Will about what it…
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Finding Your Way Through the Holidays with FTD
The holidays can magnify everything about living with FTD, but can also become opportunities to adapt and create new ways for connection. For families navigating FTD, the key isn’t trying…
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Study Investigates if Clinical PSP Diagnoses Match Neuropathology in a National Dataset
A study published in the medical journal Alzheimer’s & Dementia finds disagreement between progressive supranuclear palsy (PSP) diagnoses made in-clinic and brain autopsies in the National Alzheimer’s Coordinating Center’s (NACC)…
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Rev. Jesse Jackson, Civil Rights Leader, Diagnosed with PSP
The FTD community extends its heartfelt support to Rev. Jesse Jackson and his family following the news today that the civil rights icon has been diagnosed with progressive supranuclear palsy…
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