News & Events
The Lived Experience of FTD: “Holiday Hacks” That Can Make the Season More Enjoyable
The following guest feature was written by Kevin Rhodes and other members of AFTD’s Persons with FTD Advisory Council. Members of the Council help guide AFTD on its mission for an FTD-free future. The holidays…
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GemVax & KAEL Announces Results from Phase 2 PSP Study
South Korean biopharmaceutical company GemVax & Kael announced the results from its Phase 2 clinical trial of a potential drug for progressive supranuclear palsy Richardson’s syndrome (PSP-RS, a PSP subtype).…
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AFTD Director of Research Engagement Shana Dodge Presents at 2025 NORD Breakthrough Summit Lightning Round
AFTD Director of Research Engagement Shana Dodge, PhD, presented on an AFTD-hosted industry advisory panel during the 2025 National Organization of Rare Disorders (NORD) Breakthrough Summit Lightning Round. Dr. Dodge’s…
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Volunteer Update: AFTD Welcomes New AFTD Ambassadors
Since its launch in 2019, the AFTD Ambassador program has grown into a dynamic force for change. In just five years, a small group of dedicated volunteers has evolved into…
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AFTD CEO Susan Dickinson Featured on Dementia Untangled Podcast
AFTD CEO Susan L-J Dickinson, MSGC, recently joined hosts Heather Mulder and Janice Greenough on the Dementia Untangled podcast to discuss FTD, sharing insights about diagnosis challenges, the impact on…
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Dear HelpLine: Sharing the Diagnosis
Dear HelpLine, My wife was diagnosed with FTD this past year and we will be seeing family over the holidays. This will be the first time we will be seeing…
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Bobby Kimball, Toto’s Original Lead Singer, Living with FTD
The FTD community extends its heartfelt support to Bobby Kimball, original lead vocalist of the band Toto, and his family as the world learns more about the singer’s journey with…
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Understanding and Responding to FTD Behaviors
Behavioral symptoms associated with FTD often present significant challenges, not only for the individual diagnosed but also for their care partners. FTD behaviors, such as disinhibition, apathy, compulsivity, or loss…
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