Honoring Lives Touched by FTD: The 2025 In-Memoriam Video
AFTD invites you to view our first In-Memoriam video, a heartfelt tribute honoring the lives of those we lost to FTD. This compilation features photographs shared by families across the FTD community, creating a powerful visual testimony to the individuals behind this devastating disease. Each person included in this tribute represents a person who was…
Read MoreMemory Care That May Slow Dementia Decline
Memory care snapshot: As Robin Latimer lined up her putt on the portable green at Alice’s Clubhouse, she cracked a joke that made everyone laugh. When the ball dropped, applause erupted around her. It was a small moment—but for someone living with dementia, and for those who love her, it was everything. “I need fellowship,”…
Read MoreFTD in the Arts at Christie’s Los Angeles
History of FTD in the Arts During the AFTD 2024 Education Conference, AFTD launched the FTD in the Arts exhibit to explore how individuals facing an FTD journey utilize artistic expression to navigate their evolving realities. An in-person attendee at that event was so inspired by the artwork that they connected AFTD with Christie’s, the…
Read MoreAdvancing Hope: AFTD and partners Award $2.1 Million in New FTD Diagnostic Biomarkers Initiative
AFTD currently has six active research funding programs to support FTD research at all stages, from discovery research to clinical trials. The newest of these programs is the FTD Diagnostic Biomarkers Initiative, based on the urgent need for early and accurate diagnosis. This program is generously supported by the AFTD Holloway Family Fund, the Alzheimer’s…
Read MoreFrom Sean 1.0 to Sean 2.0: One Couple’s FTD Journey
When Sean Durbin noticed he was struggling to find the right words during conversations, he knew something was off. The once-boisterous extrovert who thrived at the center of family gatherings found himself needing to step back from the noise and activity he’d always loved. This experience was the start of their FTD journey. “I was…
Read MoreHope on the Horizon: Daniel Barvin’s Personal Mission to Transform FTD Treatment
In 2017, Daniel Barvin was newly married, MBA in hand, and building a promising career in wealth management at Morgan Stanley. Then came the diagnosis that would reshape everything: He carries the C9ORF72 genetic variant, dramatically increasing his risk of developing FTD and ALS. For many, that news might feel like an ending. For Barvin,…
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