News & Events

PBS Documentary Spotlights FTD Couple to Exemplify U.S. “Caregiving Crisis”

Caregiving, a new PBS documentary executive-produced by Bradley Cooper, reveals America’s caregiving crisis through expert insight and intimate stories – including the story of a couple facing FTD. In the…

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AFTD Ambassador Dan Moser Interviewed on Florida Radio

AFTD Ambassador Dan Moser was interviewed last month about his work supporting FTD caregiving by Florida PBS/NPR station WGCU.   Following a long search for a diagnosis, and then after ten…

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In Podcast Interview, AFTD Ambassador Shares How He Found Purpose Amid Grief

When Scott Oxarart lost his father Steve to FTD in August 2023, he transformed his grief into a powerful mission to help other families navigate the challenges he faced. Oxarart…

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The Lived Experience of FTD: Brothers Explain in Podcast How They Live With Gene Linked to FTD

In a recent interview with NPR member station WUNC, for their podcast “Embodied,” brothers Ansel Dow, 31, and Cosmo Hinsman, 26, discussed the devastating impact of genetic FTD on their…

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Dear HelpLine: Comstock Grants

Dear HelpLine, We recently joined an FTD support group, which has been so helpful. The support group volunteer told us about AFTD’s Comstock Grants. Can you help us learn more?…

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Advancing Hope: AFTD Attends the Tau Global Conference

In late April, AFTD Research team members attended a premier conference focused exclusively on research into tau, a protein which is aggregated in Progressive Supranuclear Palsy (PSP), Corticobasal Syndrome (CBS),…

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Brain Pathology Consistent with FTD Found in Roughly 35% of Motor Neuron Disease Cases in Recent Study

According to a recent study published in the research journal Brain, brain pathology consistent with FTD was detected in roughly 35% of the participants with motor neuron disease, which includes…

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Promising FTD Gene Therapy from AviadoBio Featured in the UK Guardian

In London’s Docklands, British biotech company AviadoBio is developing a promising gene therapy to treat FTD. The Guardian wrote about the company’s progress on June 13. AviadoBio’s lead therapy, AVB-101,…

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