The Cruelest Disease You’ve Never Heard Of: Frontotemporal Dementia

As seen on 60 Minutes

In the U.S. and around the world, there is growing understanding that not all dementia is Alzheimer’s. However, what too few realize today is that dementia can impact younger adults.

Today too few recognize that frontotemporal dementia, also known as frontotemporal degeneration, FTD, or Pick’s disease, is the most common form of dementia diagnosed in people under age 60.

FTD gradually erodes an individual’s personality, their ability to speak, make sound decisions, move and/or behave within social norms. FTD is actually a group of progressive diseases affecting the same brain regions. These diseases include behavioral variant FTD, primary progressive aphasia (PPA), corticobasal degeneration, progressive supranuclear palsy, and FTD/ALS.

Today, there are no treatments, and there is no cure. But support is available – you don’t have to face an FTD journey on your own. AFTD envisions a world with compassionate care, effective support, and a future free of FTD. We are the nation’s leading organization focused exclusively on addressing FTD, and we’re here to help.

Resources

Have questions? Contact AFTD’s HelpLine at 1-866-507-7222 or email [email protected].

Watch a Preview from CBS’s 60 Minutes. “The Cruelest Disease You’ve Never Heard Of: Frontotemporal Dementia”

https://www.cbsnews.com/news/the-cruelest-disease-youve-never-heard-of-frontotemporal-dementia-60-minutes-2019-05-02/

What is Frontotemporal Dementia? US News and World Report, April 18

https://health.usnews.com/health-care/patient-advice/articles/what-is-frontotemporal-dementia

BvFTD: Know the Signs… Know the Symptoms:

https://www.theaftd.org/wp-content/uploads/2018/03/FTD-Signs-and-Symptoms-bvFTD.pdf

What is Primary Progressive Aphasia?

https://www.theaftd.org/what-is-ftd/primary-progressive-aphasia/

FTD: The Most Common Dementia Under 60: Discovery PSA

 

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