Puerto Rico
AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: info@theaftd.org.
Support Groups (local, regional, or national) meet once a month and are led by AFTD-trained volunteers or organizations that understand FTD to foster supportive group discussions regarding approaches to care, changing relationships, safety, local resources, grief, self-care, etc.
FTD Diagnostic Centers can help with diagnosis, guidance, and connections to research opportunities.
Get Involved
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting a AFTD Volunteer Coordinator at volunteer@theaftd.org.
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News & Events Near You
Guest Feature: Forget Me Not
The following Guest Feature was written by Jessica Powers, who is a care partner for her mother,…
Lifestyle Changes Can Improve Cognition in Older Adults at Risk of Decline, Alzheimer’s Study Finds
Lifestyle changes, whether structured or self-guided, can improve cognition in older adults at risk of cognitive decline,…
Tips & Advice: Brain Health and FTD
While no treatments have yet been approved for any type of FTD, emerging research is beginning to…
Genetic Counseling and Testing Should Be Offered to Persons Diagnosed with FTD, Experts Argue
A viewpoint article published in the medical journal Neurology argues that genetic counseling and testing should be…
“Alzheimer’s & Dementia” Summarizes Inaugural Holloway Summit’s Discussions on Digital Health Technologies for FTD
An article published in the journal Alzheimer’s & Dementia arose from AFTD’s inaugural Holloway Summit in 2022,…
Passage Bio Provides Updated Interim Data from UpliFT-D Clinical Trial for FTD-GRN
Biotechnology firm Passage Bio recently provided updated interim data from its phase 1/2 clinical trial for its…
PBS Documentary Spotlights FTD Couple to Exemplify U.S. “Caregiving Crisis”
Caregiving, a new PBS documentary executive-produced by Bradley Cooper, reveals America’s caregiving crisis through expert insight and…
Florida Radio Station Spotlights AFTD Ambassador for His Dementia-Care Advocacy
AFTD Ambassador Dan Moser was interviewed last month about his work supporting FTD caregiving on the radio…
The Lived Experience of FTD: Brothers Explain in Podcast How They Live With Gene Linked to FTD
In a recent interview with NPR member station WUNC, for their podcast “Embodied,” brothers Ansel Dow, 31,…
Dear HelpLine: Comstock Grants
Dear HelpLine, We recently joined an FTD support group, which has been so helpful. The support group…