The International Business Times UK recently drew an important connection between FTD advocacy efforts and the new FTD Registry recently voted into law in New York state.

The passage of New York’s registry law represents a significant victory shaped by advocacy voices both prominent and low-profile, united by their experience with FTD. Sen. Michelle Hinchey sponsored the bill in honor of her late father, Congressman Maurice Hinchey, who lived with FTD, bringing deeply personal motivation to this legislative achievement.

Emma Heming Willis, wife of actor Bruce Willis, who was diagnosed in 2023, used her platform to support the registry law, calling its passage “history made in New York” and “community in action.”

Most important, the law was supported by hundreds of FTD advocates who called their representatives, wrote letters, and drew attention to the registry’s importance on social media.

The passage of the law highlights how personal stories and determined advocacy can drive meaningful policy change. Your advocacy matters. Visit the AFTD website for more information on joining thousands of others who advocate for a stronger foundation for FTD research, diagnosis, and support nationwide.

Read the article here.