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A Conversation with Olga Uspenskaya, MD, PhD, of Prevail Therapeutics
Recently, Prevail Therapeutics presented interim results from their Phase 1/2 open-label clinical trial assessing the safety and…
Passage Bio Receives Positive Feedback from FDA on Expanding Gene Therapy to C9orf72
Biopharmaceutical company Passage Bio announced on July 16 that it has received positive feedback from the U.S….
Researcher Explains the Role of Genetics in FTD, Discusses Avenues for Treatment
In an article written for The Conversation, Fen-Biao Gao, PhD, professor and founding director of the FTD…
Managing a Diagnosis: Brian’s FTD Story
In 2020, when Brian Dowden was in his late 30s, he noticed changes in his cognitive abilities…
British/Dutch Study Discovers Role of ANG Gene Mutations in ALS-FTD
Researchers at the University of Bath in the United Kingdom and the University Medical Center Utrecht in…
AFTD and ALLFTD Collaborate on Brain Donation Video
AFTD and ALLFTD have partnered to create a brief animated video that explains the brain donation process,…
Dear HelpLine: Support for Familial and Genetic FTD
Dear HelpLine, My mom was recently diagnosed with FTD; my late uncle and grandmother had dementia, and…
Vesper Bio Completes Single Ascending Dose Stage of Its Clinical Trial for Potential Disease Modifying Treatment for FTD-GRN
Biotechnology company Vesper Bio announces it has completed the single ascending dose stage in its clinical trial…
Delaware Passes Resolution Recognizing FTD Awareness Week 2024
Delaware became the third state to officially recognize FTD Awareness Week 2024 (September 22-29) after its Senate…
Advocacy Update: Join AFTD in Advocating for FTD Awareness Week in All 50 States
This past May, AFTD staff and other FTD advocates traveled to New York and California to celebrate…
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