PBS Documentary Spotlights FTD Couple to Exemplify U.S. “Caregiving Crisis”
Caregiving, a new PBS documentary executive-produced by Bradley Cooper, reveals America’s caregiving crisis through expert insight and intimate stories – including the story of a couple facing FTD. In the documentary, Malcoma Brown-Ekeogu of Georgia, who left her job to care fulltime for her husband Kenneth Ekeogu, is shown feeding and dressing him, as well…
Read MoreFlorida Radio Station Spotlights AFTD Ambassador for His Dementia-Care Advocacy
AFTD Ambassador Dan Moser was interviewed last month about his work supporting FTD caregiving on the radio program Gulf Coast Life, which airs on the Fort Myers, Fla.–based NPR station WGCU. Following a long search for a diagnosis, and then after ten years living with FTD, Moser’s wife Maria passed away about two years ago.…
Read MoreIn-Person Meet and Greet in West Liberty, Ohio
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at Otterbein Green Hills Senior Life Community in West Liberty, hosted by AFTD Volunteer Brad Greek, on August 7, 2025, from 6-8 PM ET. RSVP by emailing Brad. Learn more about and share news of this and…
Read MoreIn-Person Meet and Greet in Bellefontaine, Ohio
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at Logan County Friendly Senior Center in Bellefontaine, hosted by AFTD Volunteer Brad Greek, on August 4, 2025, from 2-4 PM ET. RSVP by emailing Brad. Learn more about and share news of this and a related…
Read MoreIn Podcast Interview, AFTD Ambassador Shares How He Found Purpose Amid Grief
When Scott Oxarart lost his father Steve to FTD in August 2023, he transformed his grief into a powerful mission to help other families navigate the challenges he faced. Oxarart recently appeared on Washoe Life, a podcast produced in Washoe Valley, Nev., to speak about the deep fulfillment he finds in creating the support network…
Read MoreThe Lived Experience of FTD: Brothers Explain in Podcast How They Live With Gene Linked to FTD
In a recent interview with NPR member station WUNC, for their podcast “Embodied,” brothers Ansel Dow, 31, and Cosmo Hinsman, 26, discussed the devastating impact of genetic FTD on their family, and how their lives changed with the knowledge that they, too, carry the MAPT gene mutation, one of the three common genetic variants associated…
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