FTD Research Spotlight: Genetic FTD Trials Update – Approaching a Phase 3 Milestone
The FTD research landscape is on the verge of major developments. For the first time, a Phase 3 trial has been completed for a potentially disease-modifying treatment for a type of genetic FTD, with results expected in 2025. As we wait for these Phase 3 trial results, we are taking time to summarize current updates…
Read MoreEmma Heming Willis Shares Family Updates on The Oprah Podcast
Emma Heming Willis, Bruce Willis’s wife and caregiver, was interviewed by Oprah Winfrey on “The Oprah Podcast” yesterday about her family’s journey with FTD. Mrs. Willis is currently making a series of media appearances to discuss her new book, “The Unexpected Journey: Finding Strength, Hope, and Yourself on the Caregiving Path,” set to release September…
Read MoreAFTD Webinar: The Lived Experience with FTD: The Road an FTD Diagnosis
The Lived Experience with FTD: The Road to an FTD Diagnosis While awareness of FTD disorders is increasing, many people still face a lengthy and complicated path to receiving a diagnosis. In this webinar, presenters will share their personal journeys to diagnosis, highlighting the obstacles they encountered and how they overcame them. Their experiences will…
Read MoreAFTD Grantee Discusses Use of Proteins for Diagnosing FTD and Tracking Severity in Interview
Rowan Saloner, PhD, recipient of AFTD’s 2024 Clinical Research Training Scholarship in FTD, discusses how measuring protein levels in cerebrospinal fluid (CSF) can help diagnose FTD in a recent interview with The Pathologist. Dr. Saloner highlights the results of a recent study he led that showed that levels of specific proteins could potentially be used to…
Read MoreGuest Feature: Learning to live with familial FTD
The following Guest Feature was written by Brooke Teweles, who lost her mother and aunt this year to a form of FTD-ALS with genetic roots. Brooke is a proud advocate for FTD and ALS research. On her blog, Both Things Are True, and her Instagram, she writes about grief, joy, and hope. The summer before…
Read MoreAFTD Advocates Visit California Capitol for Passage of FTD Awareness Week Resolution
AFTD staff and advocates, including Emma Heming Willis, traveled to Sacramento on August 18 to celebrate California’s official recognition of FTD Awareness Week 2025. This is California’s second consecutive year passing a resolution to mark FTD Awareness Week. It joins 19 other states that have passed FTD Awareness Week resolutions and/or proclamations. Last year, a…
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