Emma’s Book Tour Updates
As Emma Heming Willis visits with media outlets to discuss her new book, “The Unexpected Journey: Finding Strength, Hope, and Yourself on the Caregiving Path,” we’ll summarize those appearances here (and link to them, where possible). “Emma and Bruce Willis: The Unexpected Journey – A Diane Sawyer Special,” Tuesday, August 26 See our article here. Men’s…
Read MoreAdvancing Hope: AFTD and Registry Staff Attend International Dementia Conference
AFTD and FTD Disorders Registry staff attended the Alzheimer’s Association International Conference (AAIC) at the end of July in Toronto, Canada. The conference drew over 19,000 attendees and had a diverse program covering research and clinical breakthroughs for Alzheimer’s and related dementias such as FTD. AFTD and Registry staff shared a booth, enabling them to…
Read MoreDear HelpLine: AFTD’s Awareness Cards
Dear Helpline, When we’re out shopping, my loved one sometimes feels overwhelmed, and I worry people don’t realize their behavior is part of their condition. How can I support them and explain it to others in a kind way?” Individuals living with frontotemporal degeneration (FTD) and their care partners may encounter situations in the community…
Read MoreFTD Science Digest: What happens when a Phase 3 clinical trial concludes?
You may know that a number of ongoing clinical trials are evaluating treatments with the potential to slow, or even stop, the progression of FTD. (Some of those trials are currently recruiting participants.) This includes Alector’s trial for latozinemab, which expects Phase 3 results some time in 2025. But what is a Phase 3 trial…
Read MoreFTD Research Spotlight: Genetic FTD Trials Update – Approaching a Phase 3 Milestone
The FTD research landscape is on the verge of major developments. For the first time, a Phase 3 trial has been completed for a potentially disease-modifying treatment for a type of genetic FTD, with results expected in 2025. As we wait for these Phase 3 trial results, we are taking time to summarize current updates…
Read MoreEmma Heming Willis Shares Family Updates on The Oprah Podcast
Emma Heming Willis, Bruce Willis’s wife and caregiver, was interviewed by Oprah Winfrey on “The Oprah Podcast” yesterday about her family’s journey with FTD. Mrs. Willis is currently making a series of media appearances to discuss her new book, “The Unexpected Journey: Finding Strength, Hope, and Yourself on the Caregiving Path,” set to release September…
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