Unravelled World Premiere
Unravelled tells the real story of the connection between Canadian researcher Dr. Anne Adams, whose FTD diagnosis led to the development of remarkable painting skills, and French composer Maurice Ravel, who lived with FTD a century before her. The play shows the impact of FTD on Anne and her husband, and explores the connection she…
Read MoreUnravelled World Premiere
Unravelled tells the real story of the connection between Canadian researcher Dr. Anne Adams, whose FTD diagnosis led to the development of remarkable painting skills, and French composer Maurice Ravel, who lived with FTD a century before her. The play shows the impact of FTD on Anne and her husband, and explores the connection she…
Read MoreUnravelled World Premiere
Unravelled tells the real story of the connection between Canadian researcher Dr. Anne Adams, whose FTD diagnosis led to the development of remarkable painting skills, and French composer Maurice Ravel, who lived with FTD a century before her. The play shows the impact of FTD on Anne and her husband, and explores the connection she…
Read MoreVirtual Meet and Greet for People Affected by FTD in Las Vegas, NV, and Surrounding Areas
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in Las Vegas and the surrounding area, hosted by AFTD Volunteers Crystal Keene and Marc Olson, on November 1. RSVP by emailing Crystal or texting 702-622-1199, including your name and email address for the Zoom link.…
Read MoreAdvancing Hope: AFTD Helps Organize C9orf72 Prevention Trial Workshop
A recent publication, Design considerations for C9orf72 disease prevention trials, arose from a two-day workshop that was led by Adam Boxer, MD, PhD, (UCSF) and Michael Benatar, MD, PhD, (University of Miami) and highlights the tools needed to design a clinical trial where therapeutic approaches would be applied during the earliest stages of neurodegenerative diseases…
Read MoreDear Helpline: What Comes After an FTD Diagnosis?
When a doctor first says the words frontotemporal degeneration (FTD), everything changes. Some describe it as feeling like the ground drops out from under them — fear, grief, and endless questions fill the space where answers should be. AFTD first published The Doctor Thinks It’s FTD: Now What? in 2013 to support families newly receiving…
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