Advancing Hope: AFTD Helps Organize C9orf72 Prevention Trial Workshop
A recent publication, Design considerations for C9orf72 disease prevention trials, arose from a two-day workshop that was led by Adam Boxer, MD, PhD, (UCSF) and Michael Benatar, MD, PhD, (University…
Read MoreDear Helpline: What Comes After an FTD Diagnosis?
When a doctor first says the words frontotemporal degeneration (FTD), everything changes. Some describe it as feeling like the ground drops out from under them — fear, grief, and endless…
Read MoreFTD Research Center Lab Tour
Join AFTD Ambassador Dawn O’Gara for a tour of the Frontotemporal Dementia Research Center at the RNA Therapeutics Institute of the University of Massachusetts Chan Medical School on October 15…
Read MorePartners in FTD Care: Genetic FTD Trials Update – Approaching a Phase 3 Milestone
The FTD research landscape is on the verge of major developments. For the first time, a Phase 3 trial has been completed for a potentially disease-modifying treatment for genetic FTD,…
Read MoreComedian Shares Her FTD Caregiving Journey on Podcast
Obviously there’s nothing funny about an FTD diagnosis—even for someone who makes their living finding the humor in everyday life. But Kelsey Cook, a nationally touring comedian known for her…
Read MorePeople at Potential Risk of Developing FTD Share Views on Effects of Predictive Biomarker Testing
People at risk, or potentially at risk, of developing FTD from a genetic mutation shared their perspectives on the potential effects the results of predictive biomarker testing would have on…
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