Advancing Hope: AFTD Announces 2025 FTD Research Roundtable Leadership Committee
AFTD has launched its 3rd year of the FTD Research Roundtable. This program offers a forum for drug developers, regulators, academic leaders, and advocates to discuss shared challenges and potential solutions to accelerate the development of effective treatments for FTD. Jonathan Rohrer, MD, PhD from University College London (GENFI) and Arthur Simen, MD, PhD from…
Read MoreN.Y. Senator Hinchey Reintroduces Bill to Create State FTD Registry
A bill that would establish a registry of FTD diagnoses in New York State was reintroduced in January by New York state Sen. Michelle Hinchey. Sen. Hinchey and AFTD’s Director of Advocacy and Volunteer Engagement, Meghan Buzby, were interviewed March 23 on the CBS affiliate in Albany discussing the proposed registry. “The bill is important…
Read MoreAFTD Webinar: How to Find a Genetic Counselor
FTD has a stronger genetic risk than other dementias. While not all FTD is inherited, understanding whether the FTD in your family is genetic is crucial: it can confirm the diagnosis, inform care choices, and help you anticipate future care needs, plan financially, and allow relatives to make informed decisions around family and future planning.…
Read MoreRegional, Virtual Meet & Greet for Idaho, Oregon, and Washington for Parents Caring for a Spouse With FTD
Join and learn from others who understand the FTD journey at this virtual, regional AFTD Meet & Greet event for parents whose spouses are diagnosed with FTD in Idaho, Oregon, and Washington, hosted by AFTD volunteer Julie Motschenbacher, on April 28, 2025. This Meet & Greet will provide an opportunity to talk with others who…
Read MoreRegional, Virtual Meet & Greet for Idaho, Oregon, and Washington for Parents Caring for a Spouse With FTD
Join and learn from others who understand the FTD journey at this virtual, regional AFTD Meet & Greet event for parents whose spouses are diagnosed with FTD in Idaho, Oregon, and Washington, hosted by AFTD volunteer Julie Motschenbacher, on April 28, 2025. RSVP by emailing Julie at m13family at gmail.com. We encourage you to download this flyer and…
Read MorePartners in FTD Care: Bridging the Gap Between FTD and ALS
FTD lies at the genetic and symptomatic intersection of a number of neurodegenerative disorders. One of them is amyotrophic lateral sclerosis (ALS). A variant in the C9orf72 gene is the most common cause of both genetic FTD and ALS, and both FTD and ALS can present within the same family, or even in the same…
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