Dear HelpLine: AFTD’s Awareness Cards
Dear Helpline, When we’re out shopping, my loved one sometimes feels overwhelmed, and I worry people don’t realize their behavior is part of their condition. How can I support them and explain it to others in a kind way?” Individuals living with frontotemporal degeneration (FTD) and their care partners may encounter situations in the community…
Read MoreFTD Science Digest: What happens when a Phase 3 clinical trial concludes?
You may know that a number of ongoing clinical trials are evaluating treatments with the potential to slow, or even stop, the progression of FTD. (Some of those trials are currently recruiting participants.) This includes Alector’s trial for latozinemab, which expects Phase 3 results some time in 2025. But what is a Phase 3 trial…
Read MoreFTD Research Spotlight: Genetic FTD Trials Update – Approaching a Phase 3 Milestone
The FTD research landscape is on the verge of major developments. For the first time, a Phase 3 trial has been completed for a potentially disease-modifying treatment for a type of genetic FTD, with results expected in 2025. As we wait for these Phase 3 trial results, we are taking time to summarize current updates…
Read MoreEmma Heming Willis Shares Family Updates on The Oprah Podcast
Emma Heming Willis, Bruce Willis’s wife and caregiver, was interviewed by Oprah Winfrey on “The Oprah Podcast” yesterday about her family’s journey with FTD. Mrs. Willis is currently making a series of media appearances to discuss her new book, “The Unexpected Journey: Finding Strength, Hope, and Yourself on the Caregiving Path,” set to release September…
Read MoreAFTD Webinar: The Lived Experience with FTD: The Road an FTD Diagnosis
The Lived Experience with FTD: The Road to an FTD Diagnosis While awareness of FTD disorders is increasing, many people still face a lengthy and complicated path to receiving a diagnosis. In this webinar, presenters will share their personal journeys to diagnosis, highlighting the obstacles they encountered and how they overcame them. Their experiences will…
Read MoreAFTD Grantee Discusses Use of Proteins for Diagnosing FTD and Tracking Severity in Interview
Rowan Saloner, PhD, recipient of AFTD’s 2024 Clinical Research Training Scholarship in FTD, discusses how measuring protein levels in cerebrospinal fluid (CSF) can help diagnose FTD in a recent interview with The Pathologist. Dr. Saloner highlights the results of a recent study he led that showed that levels of specific proteins could potentially be used to…
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