Advocacy Update: FTD Research at NIH Highlighted in FY26 LHHS Appropriations Reports
AFTD is excited to share that congressional reports for the Fiscal Year (FY) 2026 Labor, Health and Human Services, Education, and Related Agencies (LHHS) appropriations bills in the Senate and House of Representatives include language encouraging research on FTD. The Senate LHHS Committee report highlights the urgent need for biomarker discovery in diverse populations, long-term…
Read MoreAFTD Ambassador Carrie Edwards donates lottery winnings to AFTD
Carrie Edwards recently surprised Virginia lottery officials by telling them her plans for the $150,000 she won on September 8. Those plans? Give it all away. But those who know Carrie weren’t surprised at all by her decision to use her windfall to support “healing, service, and community,” in her words. Interviewed on Inside Edition,…
Read MoreIn-Person Meet and Learn for People Affected by FTD in Wayne, NJ, and Surrounding Areas
Join others facing FTD and learn more about the disorder, available AFTD resources, and more at this in-person AFTD Meet & Learn event in Wayne, NJ, hosted by Sandra and Diana Gonzalez-Morett, on Saturday, October 10. You can RSVP for this event by emailing Sandra. Learn more about this event by downloading the PDF flyer.
Read MoreGroup of MAPT Gene Variations Linked to Greater Risk of Pick’s Disease Pathology, Study Finds
A study published in The Lancet Neurology found that a MAPT genetic variant is associated with an increased risk of an FTD tau pathology called Pick’s disease. This MAPT gene variant is incidentally associated with a decreased risk of a different FTD pathology. Pick’s Disease Driven by Three-Repeat Tau Dysfunction While originally used to…
Read MoreAFTD Ambassador Julia Pierrat featured in Los Angeles Times
“It feels like walking into a closet you haven’t been in in a while, looking for something you know is there, but you don’t know where. You just give up. It’s the giving up part that’s hard.” Marc Pierrat, 59, describing life with FTD Marc’s wife Julia Pierrat, an AFTD Ambassador since 2022, described her…
Read MoreIn-Person Gathering at Portland Memory Garden in Oregon
AFTD Ambassadors Melissa Fisher and Scott Rose will be hosting their 2nd annual gathering in the Portland Memory Garden on September 27 to honor their loved ones and to celebrate AFTD advocate volunteer Julia Bradshaw getting an FTD proclamation passed for the second year in a row. People living with FTD, current and former care…
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