Emma Heming Willis Shares Family Updates on The Oprah Podcast

Emma Heming Willis, Bruce Willis’s wife and caregiver, was interviewed by Oprah Winfrey on “The Oprah Podcast” yesterday about her family’s journey with FTD. Mrs. Willis is currently making a series of media appearances to discuss her new book, “The Unexpected Journey: Finding Strength, Hope, and Yourself on the Caregiving Path,” set to release September…

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AFTD Webinar: The Lived Experience with FTD: The Road an FTD Diagnosis

The Lived Experience with FTD: The Road to an FTD Diagnosis   While awareness of FTD disorders is increasing, many people still face a lengthy and complicated path to receiving a diagnosis. In this webinar, presenters will share their personal journeys to diagnosis, highlighting the obstacles they encountered and how they overcame them. Their experiences will…

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AFTD Grantee Discusses Use of Proteins for Diagnosing FTD and Tracking Severity in Interview

Graphic Text: AFTD Grantee Discusses Use of Proteins for Diagnosing FTD and Tracking Severity in Interview | Graphic Background: Dr. Rowan Saloner

Rowan Saloner, PhD, recipient of AFTD’s 2024 Clinical Research Training Scholarship in FTD, discusses how measuring protein levels in cerebrospinal fluid (CSF) can help diagnose FTD in a recent interview with The Pathologist. Dr. Saloner highlights the results of a recent study he led that showed that levels of specific proteins could potentially be used to…

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Guest Feature: Learning to live with familial FTD

Graphic Text: Guest Feature - Learning to live with familial FTD | Background: A photo of Brooke Teweles as a child being held by her mother.

The following Guest Feature was written by Brooke Teweles, who lost her mother and aunt this year to a form of FTD-ALS with genetic roots. Brooke is a proud advocate for FTD and ALS research. On her blog, Both Things Are True, and her Instagram, she writes about grief, joy, and hope. The summer before…

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