Advancing Hope – AFTD Staff Attend 2025 ALS Nexus in Dallas
Amanda Gleixner, PhD, attended the Amyotrophic Lateral Sclerosis (ALS) Nexus, held in Dallas, TX in August. The ALS Nexus is an annual conference hosted by the ALS Association which brings together researchers, clinicians, people with ALS, caregivers, advocates, and industry collaborators to collaborate and accelerate progress toward making ALS a livable disease and eventually finding…
Read MoreThe Lived Experience of FTD: The Benefits of Pets
The following Guest Feature was written by Deb Jobe, a member of the AFTD Persons With FTD Advisory Council. Deb was diagnosed with the corticobasal syndrome (CBS) subtype of FTD, and eventually left her job of 34 years. She helps cook, spends time with her daughter and grandson, and lives a rich and rewarding life. “It does…
Read MoreDr. Laura Podcast Hosts AFTD’s Esther Kane
AFTD Director of Support and Education Esther Kane, MSN, RN-CDP, joined Dr. Laura Schlesinger this week on her podcast, Dr. Laura’s Deep Dive. Kane provided context and background on FTD alongside another guest, Sue Freund, an AFTD volunteer, whose husband, Billy, had FTD and passed away earlier this year at age 58. Freund recalled thinking,…
Read MoreIn-Person Meet and Greet for People Affected by FTD in Des Moines, IA, and Surrounding Areas
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Clive, IA, hosted by AFTD Volunteer Melissa Jacobson on November 8 from 2:00 – 4:00 p.m. CT. RSVP by emailing Melissa. You don’t have to face FTD alone. These events will offer an opportunity to spend…
Read MoreUnravelled World Premiere
Unravelled tells the real story of the connection between Canadian researcher Dr. Anne Adams, whose FTD diagnosis led to the development of remarkable painting skills, and French composer Maurice Ravel, who lived with FTD a century before her. The play shows the impact of FTD on Anne and her husband, and explores the connection she…
Read MoreUnravelled World Premiere
Unravelled tells the real story of the connection between Canadian researcher Dr. Anne Adams, whose FTD diagnosis led to the development of remarkable painting skills, and French composer Maurice Ravel, who lived with FTD a century before her. The play shows the impact of FTD on Anne and her husband, and explores the connection she…
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