Emma Heming Willis Honored with Caregiving Award

Photo of Emma Heming Willis

Emma Heming Willis was recently honored by Maria Shriver’s Women’s Alzheimer’s Movement (WAM) at Cleveland Clinic, receiving the organization’s Caregiving Award for her “outstanding work in advocating for unpaid family caregivers.”  The awards were part of an educational and advocacy luncheon in Las Vegas, held May 19,  to raise awareness for two critical women’s health…

Read More

Study Identifies Profile of Blood-Based Inflammatory Proteins as Potential FTD Biomarker

Text: Study Identifies Profile of Blood-Based Inflammatory Proteins as Potential FTD Biomarker | Background: A female scientist uses a dropper to add serum to a test tube for analysis

A study published in the journal Brain earlier this year identified a profile of inflammation-related proteins that could potentially serve as a FTD biomarker gauging the severity of the disease. The profile of proteins was identified through blood serum samples, with the authors emphasizing the accessibility of blood-based biomarkers over others. Cytokines Released by Neuroinflammation,…

Read More

Tips & Advice – Navigating FTD-ALS

In 2011, researchers discovered that variants of the C9orf72 gene are the most common cause of both genetic FTD and amyotrophic lateral sclerosis (ALS). Nevertheless, it is important to recognize the genetic overlap between FTD and ALS extends beyond C9orf72. There are several other genes that can cause FTD, ALS, or both, as well as…

Read More

Coya Therapeutics Reports Positive Interim Results in Clinical Trial for Experimental FTD Therapy

Title: Coya Therapeutics Reports Positive Interim Results in Clinical Trial for Experimental FTD Therapy | Background: A pair of women scientists discuss data on a laptop screen with a male colleague

Coya Therapeutics announced positive interim results for its clinical trial for a potentially disease-modifying treatment course for FTD, citing data showing that it helped to prevent cognitive decline. Therapeutics Address Compromised Regulatory T Cell Function in FTD Previous studies by researchers at Coya and elsewhere have revealed the role of regulatory T cell (treg) dysregulation…

Read More

In-Person AFTD Meet & Greet in Astoria, New York

Text: In Person Meet & Greet - Astoria, NY | Background: A map of New York with a pin placed on Astoria

Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Astoria, NY, hosted by AFTD Ambassador Jackie Shapiro, on September 6, 2025. This Meet & Greet will be hosted on the main lawn at Astoria Park and will be a picnic style meeting. Attendees should bring…

Read More