British Study Evaluates Ability of Novel Protein Assay to Capture Blood-Based Dementia Biomarkers
A study published in the journal Alzheimer’s & Dementia evaluates the ability of a novel protein assay to detect and analyze blood-based biomarkers of dementias, including FTD. Blood Biomarkers as a Path for Early, Accurate Diagnosis Clinically usable biomarkers are essential to early and accurate diagnosis, especially as potentially disease-modifying FTD treatments progress through clinical…
Read MoreFormer U.S. Rep. Wexton, Living with PSP, Featured in “Brain & Life” Magazine
Jennifer Wexton, a former member of Congress who stepped down after revealing her progressive supranuclear palsy (PSP) diagnosis, was featured on the cover of the April/May issue of Brain & Life magazine, the official publication of the American Academy of Neurology. The article highlights her use of a device that “speaks” with an artificial intelligence–generated…
Read MoreDear HelpLine: The GUIDE Model and FTD
Dear HelpLine, My neurologist’s office recently told me about something called GUIDE, for people with dementia. I’m wondering if this program could help with FTD. Where can I learn more? GUIDE, which stands for Guiding an Improved Dementia Experience, is a new model of dementia care for Medicare beneficiaries. Programs under the GUIDE model provide…
Read MoreGenetic FTD Advocate Linde Jacobs Profiled in CBS Minnesota Segment
Linde Jacobs, a Minnesota nurse who has devoted herself to genetic-FTD advocacy after learning that she and her sisters share the same MAPT mutation that caused her mother’s FTD, was profiled by the CBS affiliate in Minneapolis on June 2. At just 50, Jacobs’ mother Allison began displaying some of the hallmark symptoms of behavioral…
Read MoreMillennial Whose Father Has PSP Explains the Challenges Faced by Millennial Caregivers
When Jennifer N. Levin’s father was diagnosed with progressive supranuclear palsy, she was only 32 and living across the country, working long hours at her job in the television industry. Nevertheless, as an only child with her father long divorced, she became his long-distance caregiver. “I was at an age where I was still building…
Read MoreAFTD Ambassador Shares Husband’s FTD Journey with West Virginia Newspaper
In a May 21 article published in the Charleston Gazette-Mail, AFTD Ambassador Debbie Elkins detailed her family’s FTD journey following the diagnosis of her husband, Chuck. She recounted the first indications that something might be wrong with Chuck, a high school basketball coach and teacher in West Virginia for 41 years and a well-loved member…
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