Priority Area 3: Advocacy and Awareness
People and families affected by FTD often gain knowledge of this disease through great struggle and at great personal cost. Fostering widespread awareness of this disease is the first step to address this challenge. Advocating for change will ensure that families facing FTD in the future will encounter a more understanding and supportive world.
How can we pave a path forward?
By advancing awareness and advocating for policy change to improve the lives of those impacted by FTD.
How will AFTD take action over the next three years?
Expand public awareness of FTD and AFTD, as reflected by an annual increase in online engagement and media coverage
- Leverage videos to educate our audience, showcase fundraising efforts and donor impact, and expand FTD awareness to a new audience
- Incorporate an earned media strategy that includes providing media support to volunteers
- Create a rapid response plan for press coverage to support an emergent opportunity or crisis caused by an FTD news story
- Enact an SEO strategy that improves the visibility of AFTD and attracts more organic traffic
- Increase the accessibility of online materials by using best practices to search, organize, and display content, and increase the number of resources in other languages
Establish and maintain a consistent presence in Washington to influence at least two federal issues identified in AFTD’s policy agenda
- Evaluate relevant legislation to determine AFTD’s position and advance co-sponsorship and support
- Participate in select coalitions to advance AFTD’s policy agenda
- Maximize engagement with our Washington-based lobbying firm
- Identify and secure seats on key national advisory bodies to ensure the perspective of FTD is represented
- Organize AFTD’s first Capitol Hill Day in Washington
Influence state-level policy in two key states
- Identify opportunities to influence policy and regulation in New York and California that align with priorities in AFTD’s policy agenda
- Identify champions in both states
- Support volunteers in joining priority dementia-related councils in both states
Grow and activate a national network of grassroots advocates, engaging an additional 20% of people each year
- Recruit, engage, and educate advocates on how to influence policymakers
- Maintain the AFTD Advocacy Action Center and robust and informative advocacy webpages
- Leverage PR and media tools to support grassroots advocacy efforts
- Create and implement a national campaign to secure proclamations and resolutions in every state




Strategic Plan Highlights
Download the full AFTD Strategic Plan 2025-2028