Beste HelpLine: Comstock Grants

Graphic Text: Dear HelpLine - Comstock Grants | Background: A jar of assorted change overflows onto a table

Dear HelpLine, We recently joined an FTD support group, which has been so helpful. The support group volunteer told us about AFTD’s Comstock Grants. Can you help us learn more? Living with FTD brings significant changes for both persons diagnosed and their care partners. As symptoms emerge — behavioral changes, language challenges, cognitive shifts —…

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Voortgaande hoop; AFTD woont de Tau Global Conference bij

Text: Advancing Hope - AFTD Attends the Tau Global Conference | Background: A photo of AFTD staff members Drs Nicole Bjorklund and Katherine Still at the 2025 Taul Global Conference

In late April, AFTD Research team members attended a premier conference focused exclusively on research into tau, a protein which is aggregated in Progressive Supranuclear Palsy (PSP), Corticobasal Syndrome (CBS), MAPT Frontotemporal Degeneration, Alzheimer’s Disease, and other neurodegenerative disorders. This conference was co-hosted by the Alzheimer’s Association, CurePSP, and the Rainwater Charitable Foundation. It brought…

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Hersenpathologie die overeenkomt met FTD gevonden in ongeveer 35% van de gevallen van motorische neuronziekte in een recent onderzoek

Graphic Text: Brain Pathology Consistent with FTD Found in Roughly 35% of Motor Neuron Disease Cases in Recent Study

According to a recent study published in the research journal Brain, brain pathology consistent with FTD was detected in roughly 35% of the participants with motor neuron disease, which includes diseases like ALS. Abnormal protein clumps were detected in 90% of the samples studied, with participants classified as having both FTD and motor neuron disease…

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Veelbelovende FTD-gentherapie van AviadoBio in de Britse krant The Guardian

In London’s Docklands, British biotech company AviadoBio is developing a promising gene therapy to treat FTD. The Guardian wrote about the company’s progress on June 13. AviadoBio’s lead therapy, AVB-101, targets the specific genetic form FTD-GRN, caused by mutations that create a deficiency in progranulin, a protein essential for healthy brain cells. The treatment represents…

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FTD Science Digest: Help de wetenschap vooruit door lid te worden van het bijgewerkte FTD-stoornissenregister

Banner Text: Help Advance Science by Joining the Updated FTD Disorders Registry

It is a pivotal time for FTD clinical research. New therapies have advanced to phase 3 clinical trials. Treatments for FTD caused by variants in specific genes are closer than ever. Trials targeting sporadic FTD are also emerging, such as an ongoing trial on semantic variant primary progressive aphasia (svPPA) and an upcoming platform trial…

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FTD-onderzoek in de schijnwerpers: een nieuw onderzoeksportaal en andere updates van het FTD Disorders Registry

Banner: FTD Research Spotlight: A New Researcher Portal and Other Updates from the FTD Disorders Registry

It is a pivotal time for FTD clinical research. New therapies have advanced to phase 3 clinical trials. Treatments for FTD caused by variants in specific genes are closer than ever. Trials targeting sporadic FTD are also emerging, such as an ongoing trial on semantic variant primary progressive aphasia (svPPA) and an upcoming platform trial…

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AFTD Webinar: Logopedie - Een veelbelovende praktijk in de behandeling en zorg van FTD

Wanneer patiënten hun vermogen om effectief te communiceren verliezen, verwijzen artsen en andere zorgverleners hen vaak door naar een logopedist om hen te helpen hun spreekvaardigheid terug te krijgen. Maar bij patiënten met de FTD-stoornis die bekend staat als primair progressieve afasie (PPA), komt het verloren spreekvermogen niet terug en wordt de communicatie alleen maar slechter naarmate de hersenen...

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De ervaring van FTD: de uitdagingen van 4 juli

Text: The Lived Experience of FTD: The Challenges of July Fourth | Background: A hand holds a sparkler and an American flag among a dark backdrop

The following article was written by former Persons with FTD Advisory Council member Cindy Odell. The Council works to ensure the voice of people living with FTD guides AFTD as it works towards a future free from FTD; you can learn more about the Council and current members on AFTD’s website. What an exciting time…

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2e jaarlijkse Jim Tobin Memorial Golftoernooi

AFTD-ambassadeur Dawn O'Gara organiseert het 2e jaarlijkse Jim Tobin Memorial Golftoernooi op 28 september 2025, waarvan de volledige opbrengst ten goede komt aan AFTD voor onderzoek. Het toernooi vindt plaats op de Raceway Golf Club in Thompson, Connecticut. De kosten bedragen $500 per foursome, of $40 voor alleen het dinerbuffet. Het inschrijfgeld is inclusief 18 holes golf, green…

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