Massachusetts
AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: info@theaftd.org.
Support Groups (local, regional, or national) meet once a month and are led by AFTD-trained volunteers or organizations that understand FTD to foster supportive group discussions regarding approaches to care, changing relationships, safety, local resources, grief, self-care, etc.
FTD Diagnostic Centers can help with diagnosis, guidance, and connections to research opportunities.
Get Involved
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting your AFTD Volunteer Engagement Coordinator at hgruen@theaftd.org
Hannah Gruen
Volunteer Engagement Coordinator
hgruen@theaftd.org
You can also contact a volunteer local to you to find out more: AFTD Ambassadors are volunteer leaders who represent AFTD in communities and states across the United States. They raise awareness of FTD through networking, outreach, speaking engagements and attending events on behalf of AFTD.
Dawn O'Gara
dogara@theaftd.org
(Click here to learn more about Dawn O'Gara’s connection with FTD)
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News & Events Near You
Comedian Shares Her FTD Caregiving Journey on Podcast
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People at Potential Risk of Developing FTD Share Views on Effects of Predictive Biomarker Testing
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Tips & Advice: The Hidden Economic Cost of an FTD Diagnosis
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ALLFTD2 Study Receives Notice of Award for NIH Grant for Five Years of Funding
In exciting news for the FTD research community, the ALLFTD study has received funding from the National…
Advocacy Update: FTD Research at NIH Highlighted in FY26 LHHS Appropriations Reports
AFTD is excited to share that congressional reports for the Fiscal Year (FY) 2026 Labor, Health and…
AFTD Ambassador Carrie Edwards donates lottery winnings to AFTD
Carrie Edwards recently surprised Virginia lottery officials by telling them her plans for the $150,000 she won…
Group of MAPT Gene Variations Linked to Greater Risk of Pick’s Disease Pathology, Study Finds
A study published in The Lancet Neurology found that a MAPT genetic variant is associated with an…
AFTD Ambassador Julia Pierrat featured in Los Angeles Times
“It feels like walking into a closet you haven’t been in in a while, looking for something…
Advancing Hope: AFTD and Registry Staff Attend International Dementia Conference
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Dear HelpLine: AFTD’s Awareness Cards
Dear Helpline, When we’re out shopping, my loved one sometimes feels overwhelmed, and I worry people don’t…
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