Volunteer With Us

Throughout the U.S., AFTD volunteers donate their time and their talents to make the journey easier for the next family. Our volunteers truly understand the daily realities of FTD—the challenges, the setbacks, even the small triumphs. They are our community’s boots on the ground, delivering support, spreading awareness, and making a difference for others affected by FTD.

How You Can Help

Community Awareness

Raise awareness by representing AFTD at local events, connecting with others affected by FTD at informal gatherings, and talking with local media outlets about FTD and AFTD.

Support Groups

Organize and facilitate an in-person or virtual FTD caregiver support group.

Fundraising

Participate in one of AFTD's established fundraising events, or hold an independent event of your own.

See All of our Volunteer Opportunities (PDF)

Looking to participate in one of our fundraising campaigns? Learn more about hosting your own event to help support our mission!

“I just want my wife’s death to FTD to mean something,
and I’d like to give back so more people understand this disease.”

Kenneth “K.C.” McCullough, AFTD Volunteer, Virginia

“I couldn’t defeat FTD but I can walk beside others as they navigate the journey
and that is powerful. My life is richer because of my Support Group family.”

Marian Grems, Support Group Volunteer, Ohio

“I volunteer because it’s so important to spread awareness so that people
who have the disease and their caregivers get the support they need. When we do
find a cure, the public will know what this disease is and they can avail themselves of that.”

Susan Eissler, AFTD Ambassador, Central Texas

“I volunteer and network with other families experiencing FTD because it is therapeutic
for me, a coping mechanism for my grief, if you will. I know then that I’m not alone in this.”

Brian Fox, AFTD Volunteer, Nebraska

“It is, truly, very fulfilling to be a part of AFTD.
What a terrific organization that allows many to volunteer in a meaningful way.”

Sandy Cannon, AFTD Volunteer

"I am honored by the trust others put in me when sharing their fears, challenges, and small victories.
Volunteering for AFTD has given me the opportunity to pay it forward."

Marian Grems, AFTD Support Group Volunteer

AFTD’s Volunteer Program has two Volunteer Engagement Coordinators to better assist our amazing community. Hannah Gruen is the lead for Zone 1 and Carrie Johnson is the staff lead for Zone 2.

Hannah Gruen Headshot - square

Hannah Gruen
Volunteer Engagement Coordinator, Zone 1
hgruen@theaftd.org

Carrie Johnson

Carrie Johnson
Volunteer Engagement Coordinator, Zone 2
cjohnson@theaftd.org

Volunteer Coordinator Map-2024

Ready to Take Action?

Complete the AFTD volunteer form and our Volunteer Engagement Coordinators will reach out to you or call us at (267) 514-7221 and ask to speak with a Volunteer Engagement Coordinator.

For those that have registered as volunteers, click here to view the upcoming AFTD volunteer orientation dates.

Take one more step: Become an advocate

Thank You