Accomplishing AFTD’s mission requires advocacy – speaking up on behalf of persons diagnosed and their families and caregivers. Help us spread the word about FTD – so that we can spread hope for a future without this disease.

Current Advocacy Projects

National Alzheimer’s Project Act (NAPA)

In January 2011 President Obama signed NAPA into law, authorizing the Department of Health and Human Services (HHS) to establish a National Alzheimer’s Project in order to effectively treat and prevent Alzheimer’s disease and related dementias – including FTD — by the year 2025. To achieve this goal, 24 federal agencies are working with public and private partners to implement the actions and strategies described in NAPA’s National Plan.

The NAPA Advisory Council convenes quarterly for public meetings. AFTD Advocacy Manager Matt Sharp has addressed the council at each meeting, offering AFTD’s expertise and assistance in preparing the nation for the oncoming increase of FTD and other dementias.

Watch Matt Sharp speak at a NAPA Advisory Council meeting:

Support Our Efforts

Contact AFTD at for help finding opportunities to advocate on behalf of better care and a cure for FTD.

You can also find your federal, state, and local elected officials by visiting the Elected Officials page on Share your story to educate policymakers about ways to improve services and resources and intensify the research needed to find treatments – and, ultimately, a cure.

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Be sure to follow AFTD on social media and receive the latest updates on AFTD’s advocacy work.

Also, subscribe to the AFTD Newsletter, and stay informed as new advocacy projects and opportunities to get involved develop.