AFTD strongly recommends genetic counseling as a first step to consider if genetic testing is the right choice for you. You can meet with a genetic counselor individually or with a family member or friend to review your family history, address concerns, choose the most appropriate testing strategy, and help you consider how the results could impact you and your family.

What to Expect from Genetic Counseling

Finding a Genetic Counselor

There are several ways to find a genetic counselor to meet your needs. It is important to find a counselor in your state, as regulations vary across the U.S. This directory of genetic counselors with expertise in FTD, available to download as a PDF, lists active counselors by state.

For Spanish speakers, the National Society of Genetic Counselors offers a Spanish-language website, including a Spanish version of its "Find a Genetic Counselor" feature.

Watch AFTD's Webinar: FTD and Genetic Testing -- A Practical Approach