Perspectives in Research Webinar: Navigating Social and Legal Challenges in Familial FTD
April 26 @ 3:00 pm - 4:00 pm EDT
Join us for a conversation with Prof. Jalayne Arias, a researcher focused on policy, ethics, and law, and genetic counselor Laynie Dratch as they discuss important considerations for families impacted by familial FTD. They will highlight some of the sociolegal challenges these families can face, and will explain the protections provided by federal laws like the Genetic Information Nondiscrimination Act (GINA), Americans with Disabilities Act (ADA), and Health Insurance Portability and Accountability Act (HIPAA).
This Perspectives in Research Webinar is made possible through the generous support of AviadoBio.
Viewers will be able to:
- Understand what protected health information is, and how to keep it safe.
- Review the concepts of privacy, confidentiality, and anti-discrimination.
- Learn how GINA, the ADA, and HIPAA do and do not protect against genetic discrimination.
- Develop a strategy to safeguard against future discrimination.
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