La senadora de Nueva York Michelle Hinchey y Emma Heming Willis se unen a las familias de personas con degeneración frontotemporal para pedir una mayor concienciación e investigación sobre enfermedades infradiagnosticadas

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The conference also featured an art exhibit with works by people with frontotemporal degeneration (FTD); the disease can spark creativity in some people

Houston, Texas — New York State Sen. Michelle Hinchey spoke Friday about her pioneering work advancing legislation to increase FTD awareness and research at the AFTD 2024 Education Conference to more than 1,000 attendees from around the country and the world, including people with FTD and dozens of family members caring for loved ones with the disease. Emma Heming Willis, the wife of actor Bruce Willis, also spoke about her family’s decision to go public with her husband’s FTD diagnosis, how important community support is to her, and the need to raise awareness of the underdiagnosed dementia, which strikes tens of thousands of Americans, often in the prime of their lives.

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