Posts by Ed Foley
PBS Documentary Spotlights FTD Couple to Exemplify U.S. “Caregiving Crisis”
Caregiving, a new PBS documentary executive-produced by Bradley Cooper, reveals America’s caregiving crisis through expert insight and intimate stories – including the story of a couple facing FTD. In the…
Read MoreFlorida Radio Station Spotlights AFTD Ambassador for His Dementia-Care Advocacy
AFTD Ambassador Dan Moser was interviewed last month about his work supporting FTD caregiving on the radio program Gulf Coast Life, which airs on the Fort Myers, Fla.–based NPR station…
Read MoreIn Podcast Interview, AFTD Ambassador Shares How He Found Purpose Amid Grief
When Scott Oxarart lost his father Steve to FTD in August 2023, he transformed his grief into a powerful mission to help other families navigate the challenges he faced. Oxarart…
Read MoreFormer U.S. Rep. Wexton, Living with PSP, Featured in “Brain & Life” Magazine
Jennifer Wexton, a former member of Congress who stepped down after revealing her progressive supranuclear palsy (PSP) diagnosis, was featured on the cover of the April/May issue of Brain &…
Read MoreGenetic FTD Advocate Linde Jacobs Profiled in CBS Minnesota Segment
Linde Jacobs, a Minnesota nurse who has devoted herself to genetic-FTD advocacy after learning that she and her sisters share the same MAPT mutation that caused her mother’s FTD, was…
Read MoreMillennial Whose Father Has PSP Explains the Challenges Faced by Millennial Caregivers
When Jennifer N. Levin’s father was diagnosed with progressive supranuclear palsy, she was only 32 and living across the country, working long hours at her job in the television industry.…
Read MoreAFTD Ambassador Shares Husband’s FTD Journey with West Virginia Newspaper
In a May 21 article published in the Charleston Gazette-Mail, AFTD Ambassador Debbie Elkins detailed her family’s FTD journey following the diagnosis of her husband, Chuck. She recounted the first…
Read MoreEmma Heming Willis Honored with Caregiving Award
Emma Heming Willis was recently honored by Maria Shriver’s Women’s Alzheimer’s Movement (WAM) at Cleveland Clinic, receiving the organization’s Caregiving Award for her “outstanding work in advocating for unpaid family…
Read MoreFormer Judge Gains Artistic Ability after PPA Diagnosis
A former judge in Folsom, Calif., has discovered a newfound talent for visual art following a diagnosis of primary progressive aphasia, KCRA in Sacramento reported earlier this year. Two years…
Read MoreAFTD Ambassador Spencer Cline Delivers Moving Keynote Address at Hope Rising
“We are not a product of what has happened to us. We have the power of choice.” ― Stephen Covey, Author “When your biggest fear is FTD, it makes you…
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