The Lived Experience of FTD: “Holiday Hacks” That Can Make the Season More Enjoyable
The following guest feature was written by Kevin Rhodes and other members of AFTD’s Persons with FTD Advisory Council. Members of the Council help guide AFTD on its mission for an FTD-free future. The holidays are upon us, with all the hustle and bustle. It can be a happy time for all—but it can come with challenges for those with…
Read MoreGemVax & KAEL Announces Results from Phase 2 PSP Study
South Korean biopharmaceutical company GemVax & Kael announced the results from its Phase 2 clinical trial of a potential drug for progressive supranuclear palsy Richardson’s syndrome (PSP-RS, a PSP subtype). The trial demonstrated the drug’s safety and tolerability, with the company noting that its data support proceeding to a Phase 3 trial. GV1001 is Safe…
Read MoreAFTD Director of Research Engagement Shana Dodge Presents at 2025 NORD Breakthrough Summit Lightning Round
AFTD Director of Research Engagement Shana Dodge, PhD, presented on an AFTD-hosted industry advisory panel during the 2025 National Organization of Rare Disorders (NORD) Breakthrough Summit Lightning Round. Dr. Dodge’s abstract and poster were among the few presentations from dozens of applicants selected to participate in the lightning round. Bringing Together Professionals and Those on…
Read MoreIn-Person Meet & Greet in Punta Gorda, FL, for People Affected by FTD
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Punta Gorda, FL, hosted by AFTD volunteer Julie Moore, on Saturday, January 10, 2026. You don’t have to face FTD alone. These events will offer an opportunity to spend time getting to know one another, learn…
Read MoreAFTD Webinar: FTD Research 2025: Paving the Path Towards Effective Treatments
It has been an exciting year full of progress in FTD research with exciting updates on how we can better diagnose and treat FTD. Join AFTD’s Senior Director of Scientific Initiatives, Dr. Penny Dacks, and the Chair of AFTD’s Medical Advisory Council and Director of Johns Hopkins University’s Frontotemporal Dementia and Young-Onset Dementias Clinic, Dr.…
Read MoreVolunteer Update: AFTD Welcomes New AFTD Ambassadors
Since its launch in 2019, the AFTD Ambassador program has grown into a dynamic force for change. In just five years, a small group of dedicated volunteers has evolved into a passionate, year-round community of leaders united in their commitment to a world without FTD. AFTD Ambassadors serve as vital voices for the organization across…
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