Group of MAPT Gene Variations Linked to Greater Risk of Pick’s Disease Pathology, Study Finds
A study published in The Lancet Neurology found that a MAPT genetic variant is associated with an increased risk of an FTD tau pathology called Pick’s disease. This MAPT gene variant is incidentally associated with a decreased risk of a different FTD pathology. Pick’s Disease Driven by Three-Repeat Tau Dysfunction While originally used to…
Read MoreAFTD Ambassador Julia Pierrat featured in Los Angeles Times
“It feels like walking into a closet you haven’t been in in a while, looking for something you know is there, but you don’t know where. You just give up. It’s the giving up part that’s hard.” Marc Pierrat, 59, describing life with FTD Marc’s wife Julia Pierrat, an AFTD Ambassador since 2022, described her…
Read MoreIn-Person Gathering at Portland Memory Garden in Oregon
AFTD Ambassadors Melissa Fisher and Scott Rose will be hosting their 2nd annual gathering in the Portland Memory Garden on September 27 to honor their loved ones and to celebrate AFTD advocate volunteer Julia Bradshaw getting an FTD proclamation passed for the second year in a row. People living with FTD, current and former care…
Read MoreEmma’s Book Tour Updates
As Emma Heming Willis visits with media outlets to discuss her new book, “The Unexpected Journey: Finding Strength, Hope, and Yourself on the Caregiving Path,” we’ll summarize those appearances here (and link to them, where possible). “Emma and Bruce Willis: The Unexpected Journey – A Diane Sawyer Special,” Tuesday, August 26 See our article here. Men’s…
Read MoreAdvancing Hope: AFTD and Registry Staff Attend International Dementia Conference
AFTD and FTD Disorders Registry staff attended the Alzheimer’s Association International Conference (AAIC) at the end of July in Toronto, Canada. The conference drew over 19,000 attendees and had a diverse program covering research and clinical breakthroughs for Alzheimer’s and related dementias such as FTD. AFTD and Registry staff shared a booth, enabling them to…
Read MoreDear HelpLine: AFTD’s Awareness Cards
Dear Helpline, When we’re out shopping, my loved one sometimes feels overwhelmed, and I worry people don’t realize their behavior is part of their condition. How can I support them and explain it to others in a kind way?” Individuals living with frontotemporal degeneration (FTD) and their care partners may encounter situations in the community…
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