Maratona de Detroit
Two participants in the Detroit Marathon will be adding onto their marathon experiences by fundraising for AFTD’s mission while they train and run in the race. Glenna Sikdar Creek is running in honor of her mother Carla who is currently living with FTD and Kelly Collins is also running in honor of her mother who…
consulte Mais informaçãoMeia Maratona de Chicago Life Time
Ana Gaither e alguns membros de sua família correrão a Meia Maratona Life Time Chicago de 2025 neste outono em memória da tia de Ana, Erin Lynch-McNulty, que foi diagnosticada com DFT e faleceu recentemente.
consulte Mais informaçãoCorrida de revezamento Hood to Coast
Elica Sharifnia e sua equipe de revezamento estão participando da corrida e arrecadando fundos em memória do pai de Elica, Hamid Sharifnia.
consulte Mais informaçãoJersey Freeze Ice Cream Party
AFTD Advocacy Coordinator Lauren Pelaia is hosting a sweet fundraiser at Jersey Freeze on July 10th. A portion of the sales that day from the ice cream parlor and restaurant will be donated to AFTD’s mission in memory of Lauren’s mother. Make sure to mention the event when you order to get a portion of…
consulte Mais informaçãoPrezada Linha de Ajuda: Comstock Grants
Dear HelpLine, We recently joined an FTD support group, which has been so helpful. The support group volunteer told us about AFTD’s Comstock Grants. Can you help us learn more? Living with FTD brings significant changes for both persons diagnosed and their care partners. As symptoms emerge — behavioral changes, language challenges, cognitive shifts —…
consulte Mais informaçãoPromovendo a Esperança; AFTD participa da Conferência Global Tau
In late April, AFTD Research team members attended a premier conference focused exclusively on research into tau, a protein which is aggregated in Progressive Supranuclear Palsy (PSP), Corticobasal Syndrome (CBS), MAPT Frontotemporal Degeneration, Alzheimer’s Disease, and other neurodegenerative disorders. This conference was co-hosted by the Alzheimer’s Association, CurePSP, and the Rainwater Charitable Foundation. It brought…
consulte Mais informaçãoPatologia cerebral compatível com DFT encontrada em aproximadamente 35% de casos de doença do neurônio motor em estudo recente
According to a recent study published in the research journal Brain, brain pathology consistent with FTD was detected in roughly 35% of the participants with motor neuron disease, which includes diseases like ALS. Abnormal protein clumps were detected in 90% of the samples studied, with participants classified as having both FTD and motor neuron disease…
consulte Mais informaçãoTerapia genética promissora para DFT da AviadoBio em destaque no UK Guardian
In London’s Docklands, British biotech company AviadoBio is developing a promising gene therapy to treat FTD. The Guardian wrote about the company’s progress on June 13. AviadoBio’s lead therapy, AVB-101, targets the specific genetic form FTD-GRN, caused by mutations that create a deficiency in progranulin, a protein essential for healthy brain cells. The treatment represents…
consulte Mais informaçãoFTD Science Digest: Ajude a promover a ciência juntando-se ao Registro de Distúrbios FTD Atualizado
It is a pivotal time for FTD clinical research. New therapies have advanced to phase 3 clinical trials. Treatments for FTD caused by variants in specific genes are closer than ever. Trials targeting sporadic FTD are also emerging, such as an ongoing trial on semantic variant primary progressive aphasia (svPPA) and an upcoming platform trial…
consulte Mais informaçãoDestaque da Pesquisa sobre DFT: Um Novo Portal para Pesquisadores e Outras Atualizações do Registro de Distúrbios da DFT
It is a pivotal time for FTD clinical research. New therapies have advanced to phase 3 clinical trials. Treatments for FTD caused by variants in specific genes are closer than ever. Trials targeting sporadic FTD are also emerging, such as an ongoing trial on semantic variant primary progressive aphasia (svPPA) and an upcoming platform trial…
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