Jersey Freeze Ice Cream Party
AFTD Advocacy Coordinator Lauren Pelaia is hosting a sweet fundraiser at Jersey Freeze on July 10th. A portion of the sales that day from the ice cream parlor and restaurant will be donated to AFTD’s mission in memory of Lauren’s mother. Make sure to mention the event when you order to get a portion of…
Leer másEstimada línea de ayuda: Subvenciones Comstock
Dear HelpLine, We recently joined an FTD support group, which has been so helpful. The support group volunteer told us about AFTD’s Comstock Grants. Can you help us learn more? Living with FTD brings significant changes for both persons diagnosed and their care partners. As symptoms emerge — behavioral changes, language challenges, cognitive shifts —…
Leer másPromoviendo la esperanza; AFTD asiste a la Conferencia Global Tau
In late April, AFTD Research team members attended a premier conference focused exclusively on research into tau, a protein which is aggregated in Progressive Supranuclear Palsy (PSP), Corticobasal Syndrome (CBS), MAPT Frontotemporal Degeneration, Alzheimer’s Disease, and other neurodegenerative disorders. This conference was co-hosted by the Alzheimer’s Association, CurePSP, and the Rainwater Charitable Foundation. It brought…
Leer másCompartiendo su historia para marcar la diferencia: Cómo conectar con los legisladores y generar cambios
Los recortes a los programas federales amenazan los sistemas de apoyo de los que dependen las personas con DFT y sus familias. Ahora más que nunca, tu voz importa. Únete a nuestro potente seminario web de defensa de la DFT, donde aprenderás a compartir tu experiencia con los legisladores para impulsar un cambio real. Te guiaremos…
Leer másSe encontró patología cerebral compatible con DFT en aproximadamente 35% de los casos de enfermedad de la neurona motora en un estudio reciente
According to a recent study published in the research journal Brain, brain pathology consistent with FTD was detected in roughly 35% of the participants with motor neuron disease, which includes diseases like ALS. Abnormal protein clumps were detected in 90% of the samples studied, with participants classified as having both FTD and motor neuron disease…
Leer másLa prometedora terapia génica para la DFT de AviadoBio aparece en el periódico británico The Guardian.
In London’s Docklands, British biotech company AviadoBio is developing a promising gene therapy to treat FTD. The Guardian wrote about the company’s progress on June 13. AviadoBio’s lead therapy, AVB-101, targets the specific genetic form FTD-GRN, caused by mutations that create a deficiency in progranulin, a protein essential for healthy brain cells. The treatment represents…
Leer másResumen científico de la DFT: Contribuya al avance científico uniéndose al Registro actualizado de trastornos de la DFT
It is a pivotal time for FTD clinical research. New therapies have advanced to phase 3 clinical trials. Treatments for FTD caused by variants in specific genes are closer than ever. Trials targeting sporadic FTD are also emerging, such as an ongoing trial on semantic variant primary progressive aphasia (svPPA) and an upcoming platform trial…
Leer másInvestigación destacada sobre DFT: un nuevo portal para investigadores y otras actualizaciones del Registro de Trastornos de DFT
It is a pivotal time for FTD clinical research. New therapies have advanced to phase 3 clinical trials. Treatments for FTD caused by variants in specific genes are closer than ever. Trials targeting sporadic FTD are also emerging, such as an ongoing trial on semantic variant primary progressive aphasia (svPPA) and an upcoming platform trial…
Leer másSeminario web de AFTD: Terapia del habla y el lenguaje: una práctica prometedora en el tratamiento y la atención de la DFT
Cuando los pacientes pierden la capacidad de comunicarse eficazmente, los médicos y otros profesionales clínicos suelen derivarlos a un logopeda para que les ayude a recuperar sus habilidades de habla. Sin embargo, en el caso de los pacientes con afasia progresiva primaria (APP), el trastorno de demencia frontotemporal (DFT), la capacidad de habla perdida no se recupera y la comunicación solo empeora a medida que el cerebro…
Leer másLa experiencia vivida de la FTD: Los desafíos del 4 de julio
The following article was written by former Persons with FTD Advisory Council member Cindy Odell. The Council works to ensure the voice of people living with FTD guides AFTD as it works towards a future free from FTD; you can learn more about the Council and current members on AFTD’s website. What an exciting time…
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