Estimada línea de ayuda: Cuidados paliativos y DFT
Dear HelpLine, My sister has had FTD for a few years, and her doctor recently told us we should consider moving her to hospice. What does hospice care involve? How has the experience gone for others? Hospice offers holistic care that focuses on maximizing the quality of one’s remaining life by addressing physical symptoms and…
Leer másUn estudio evalúa el trazador PET y explora cómo la PSP daña las sinapsis cerebrales
A study published in the journal Alzheimer’s & Dementia evaluates the potential utility of a novel PET tracer for progressive supranuclear palsy (PSP) while also exploring how the disorder damages synapses. The Mechanisms of Synaptic Loss in PSP are Unknown Synapses are the junctions that connect neurons, transmitting electrical or chemical signals to assist with…
Leer másEx juez adquiere capacidad artística tras diagnóstico de PPA
A former judge in Folsom, Calif., has discovered a newfound talent for visual art following a diagnosis of primary progressive aphasia, KCRA in Sacramento reported earlier this year. Two years ago, Dylan Sullivan would never have called herself an artist. As a judge in El Dorado, Calif. Superior Court, her world was the law, her…
Leer más2025 Colfax Marathon
The AFTD-Team will participate in the Colfax Marathon on May 17-18, as an Official Charity Partner. We hope you’ll join us for a weekend of connection and awareness. Race distances include: Marathon (26.2 miles); Half Marathon (13.1 miles); Urban 10-Miler; 5K (3.1 miles); and Marathon Relay (26.2 miles across five individual legs). Click here to…
Leer másColaboración de aprendizaje y consulta de BRI Care: Comprensión de la DFT: Diagnóstico, apoyo y recursos para pacientes y cuidadores
Join AFTD Director of Support and Education Esther Kane, MSN, RN-CDP for a free informative session highlighting the signs and symptoms of FTD, how it is diagnosed, and what resources are available for families on the FTD journey, presented by the Benjamin Rose Institute on Aging. A Q&A session will be held to allow attendees…
Leer másActualización para voluntarios: ¡Gracias a nuestros voluntarios!
To all those who dedicate their time and energy with AFTD to making a difference within the FTD community, we thank you! Every hour you invest and every task you undertake plays a vital role in bringing us closer to the day we have effective treatments, and finally a cure, for FTD. Thank you to…
Leer másImpulsando la esperanza: AFTD asiste a la reunión de la Academia Estadounidense de Neurología (AAN) de 2025
Staff from AFTD and the FTD Disorders Registry attended the American Academy of Neurology’s Annual Meeting earlier this month in San Diego. This meeting typically attracts around 14,000 international attendees, including many clinical neurologists. While in San Diego, AFTD and Registry staff worked to spread awareness about FTD and iconnect with others who can help…
Leer másTorneo de Golf Driving Hope 2025 de AFTD (CO)
Help support AFTD’s mission, get in 18 holes of golf on an exclusive course, and spread FTD awareness by joining AFTD’s 2025 Driving Hope Golf Tournament on August 10th at the Colorado National Golf Club in Erie, CO! Tickets are available for single golfers, foursomes, and dinner/drinks only guests. There are also multiple sponsorship opportunities…
Leer másTorneo de Golf Driving Hope 2025 de AFTD (Nueva York)
Help support AFTD’s mission, get in 18 holes of golf on an exclusive private course, participate in a tennis tournament, and spread FTD awareness by joining AFTD’s 2025 Driving Hope Golf Tournament on September 29th at the Metropolis Golf Club in White Plains, NY! Tickets are available for single golfers, foursomes, and reception only guests.…
Leer másSeminario web de la AFTD: Cómo encontrar un asesor genético
La DFT presenta un mayor riesgo genético que otras demencias. Si bien no todas las DFT son hereditarias, comprender si la DFT en su familia es genética es crucial: puede confirmar el diagnóstico, fundamentar las decisiones de atención, ayudarle a anticipar las necesidades de atención futuras, planificar sus finanzas y permitir que sus familiares tomen decisiones informadas sobre la planificación familiar y futura.
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