Transposon Therapeutics recibe la designación de vía rápida para el tratamiento de PSP
Biotechnology company Transposon Therapeutics announced on May 21 that it has received Fast Track designation from the U.S. Food and Drug Administration (FDA) for an intervention developed to treat progressive supranuclear palsy (PSP), an FTD disorder that primarily affects movement. The designation was granted to TPN-101, an orally administered drug that targets LINE-1, a virus-like…
Lee masCarta de intención del Consorcio de Biomarcadores para calificar el biomarcador FTD aceptado por la FDA
The Foundation for the National Institutes of Health (FNIH) Biomarkers Consortium announced in May that the US Food and Drug Administration (FDA) has accepted its letter of intent to apply for the qualification of the protein neurofilament light (NfL) in blood as a biomarker for the early detection of approaching symptom onset in genetic FTD.…
Lee mas24 de junio de 2024: Cumbre anual de apoyo a cuidadores de VA
AFTD staff will have an information table during the annual summit of the VA New Jersey Health Care System in East Orange. The event, which this year is titled “Beyond the Caregiving Role: Seeing the ‘Whole’ Caregiver,” will be held in the third floor auditorium in the East Orange VA Medical Center on June 24,…
Lee masCumbre anual de apoyo a cuidadores de VA
El personal de la AFTD tendrá una mesa de información durante la cumbre anual del Sistema de Atención Médica de VA Nueva Jersey en East Orange. El evento, que este año se titula “Más allá de la función de cuidador: ver al cuidador 'completo'”, se lleva a cabo en el auditorio del tercer piso del Centro Médico VA de East Orange.
Lee masAprinoia Therapeutics recibe la designación de vía rápida para el trazador PET para el diagnóstico de PSP
Biopharmaceutical company Aprionoia Therapeutics announced that it has received an FDA Fast Track Designation for an imaging tracer used to diagnose progressive supranuclear palsy (PSP), an FTD disorder that primarily affects movement. Aprinoia is evaluating the safety and efficacy of APN-1607, a PET tracer that can visualize two types of tau protein that contribute to…
Lee masEstimada línea de ayuda: apoyo para adultos jóvenes
Dear HelpLine, My mom was diagnosed with FTD and I’m looking to connect with other young adults caring for a parent with FTD. Without support, I am overwhelmed and feel alone. Do you have any suggestions? Because FTD often occurs at a younger age, young adults in the family regularly find themselves becoming a primary…
Lee masAvanzando la esperanza: AFTD se une a la iniciativa AMP ALS de los Institutos Nacionales de Salud como socio
AFTD is joining fellow nonprofits, biopharmaceutical companies, and the U.S. Food and Drug Administration (FDA) as partners in the Accelerating Medicines Partnership for ALS (AMP ALS) initiative. AFTD’s participation in the initiative was made possible thanks to the support of David and Weezie Reese. The 2011 discovery that mutations of the gene c9orf72 can cause…
Lee masEl proyecto de ley de registro FTD de Nueva York es aprobado por el Senado estatal
A bill establishing a registry of FTD diagnoses in New York State unanimously passed the state Senate on June 5. Sponsored by Sen. Michelle Hinchey, Senate Bill 7874 requires healthcare providers in New York to report diagnoses of FTD to a registry run by the state Department of Health (DOH). The bill also establishes an…
Lee masKristin Holloway, miembro de la junta directiva de la AFTD, cuenta su historia de FTD a la revista Self
AFTD Board member Kristin Holloway shared her experiences as a care partner for her husband, Lee, in an article published by Self magazine on May 17. Holloway began noticing alarming changes to Lee’s behavior in May 2016, when he was in his mid-30s. He regularly arrived late, or not at all, to his job at…
Lee mas15 de julio de 2024: Meet & Greet virtual para el área de Pittsburgh, Pensilvania
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in the Pittsburgh, Pa. area on Monday, July 15, beginning at 6:30 p.m. RSVP by emailing event host Janet Freburger at janet.freburger@gmail.com. You can also download this flyer to learn more.
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