FTD i ALS: wspólne podejście do diagnozy i opieki
We know of several genes that can cause hereditary FTD, ALS, and ALS with FTD, with C9orf72 the most common. Yet genetics is not the complete story, as these conditions can appear without a known genetic cause. In this AFTD Healthcare Professional Webinar, neurologists from Massachusetts General Hospital who specialize in FTD and ALS will…
Czytaj więcejAdvancing Hope: AFTD uczestniczy w dorocznym spotkaniu Target ALS w 2024 r
AFTD attended the 2024 Target ALS Meeting on May 7-9 in Boston, Massachusetts. There were over 800 people who attended the meeting in-person or virtually. Attendees were comprised of scientific stakeholders from academia, industry, venture capital firms, nonprofit organizations and individuals with lived experience of the disease. Researchers utilized the forum to share scientific breakthroughs…
Czytaj więcejPomoc i nadzieja: Nowa platforma rejestru zaburzeń FTD jest już dostępna!
The FTD Disorders Registry announced the launch of their updated platform at the AFTD 2024 Education Conference in Houston, TX. By joining the FTD Disorders Registry, you are counted as a key participant in the quest to end FTD disorders. By providing vital information about your lived experience of FTD disorders, you play a role…
Czytaj więcejThe Electric Merch Co.
Julia Dawson, Chief Brand Curator & Creative Director at The Electric Merch Co., recently launched a new set of loungewear with MOTHER and DAUGHTER embroidered in the company’s signature pink couture gradient font. This collection is in memory of her mother who had FTD and died in October 2023—and all mother/daughter duos that care for…
Czytaj więcej15 czerwca 2024 r.: osobiste spotkanie i powitanie w Newport News w stanie Wirginia.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Grissom Library in Newport News (366 Deshazor Drive). RSVP by emailing event host Stacey Neathery. You can also download this flyer to learn more about both this event, and an in-person Meet & Greet happening in Richmond earlier…
Czytaj więcejNewport News, Wirginia Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Grissom Library in Newport News. RSVP by emailing event host Stacey Neathery. You can also download this flyer to learn more about both this event, and an in-person Meet & Greet happening in Richmond earlier the same day.
Czytaj więcej15 czerwca 2024 r.: osobiste spotkanie i przywitanie w Richmond w stanie Wirginia.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at East End Branch of the Richmond Public Library (1200 N. 25th Street). RSVP by emailing event host Stacey Neathery. You can also download this flyer to learn more about both this event, and an in-person Meet & Greet happening…
Czytaj więcejRichmond, Wirginia. Spotkania i powitania
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at East End Branch of the Richmond Public Library. RSVP by emailing event host Stacey Neathery. You can also download this flyer to learn more about this event, as well as an in-person Meet & Greet happening…
Czytaj więcej19 czerwca 2024 r.: Wirtualne spotkanie i powitanie w Nowym Jorku
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for New York City residents, taking place Wednesday, June 19, from 6:00 to 7:30 p.m. To RSVP and obtain the Zoom link, send an email to event host Sam Given at samgivensing@gmail.com. You can also download this…
Czytaj więcejWirtualne spotkanie i powitanie w Nowym Jorku
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for New York City residents, taking place Wednesday, June 19 at 6:00 p.m. To RSVP and obtain the Zoom link, send an email to event host Sam Given at samgivensing@gmail.com. You can also download this flyer to…
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