FTD & ALS: En kollaborativ tilgang til diagnose og pleje
Vi kender til flere gener, der kan forårsage arvelig FTD, ALS og ALS med FTD, hvor C9orf72 er den mest almindelige. Alligevel er genetik ikke den komplette historie, da disse tilstande kan opstå uden en kendt genetisk årsag. I dette AFTD Healthcare Professional Webinar vil neurologer fra Massachusetts General Hospital, der specialiserer sig i FTD og ALS...
Læs mereAdvancing Hope: AFTD deltager i 2024 Target ALS årsmøde
AFTD attended the 2024 Target ALS Meeting on May 7-9 in Boston, Massachusetts. There were over 800 people who attended the meeting in-person or virtually. Attendees were comprised of scientific stakeholders from academia, industry, venture capital firms, nonprofit organizations and individuals with lived experience of the disease. Researchers utilized the forum to share scientific breakthroughs…
Læs mereHjælp og håb: Den nye FTD Disorders Registry Platform er nu live!
The FTD Disorders Registry announced the launch of their updated platform at the AFTD 2024 Education Conference in Houston, TX. By joining the FTD Disorders Registry, you are counted as a key participant in the quest to end FTD disorders. By providing vital information about your lived experience of FTD disorders, you play a role…
Læs mereThe Electric Merch Co.
Julia Dawson, Chief Brand Curator & Creative Director hos The Electric Merch Co., lancerede for nylig et nyt sæt loungewear med MOR og DAUGHTER broderet i virksomhedens karakteristiske pink couture-gradientskrifttype. Denne samling er til minde om hendes mor, der havde FTD og døde i oktober 2023 - og alle mor/datter-duoer, der tager sig af...
Læs mere15. juni 2024: In-Person Meet & Greet i Newport News, Va.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Grissom Library in Newport News (366 Deshazor Drive). RSVP by emailing event host Stacey Neathery. You can also download this flyer to learn more about both this event, and an in-person Meet & Greet happening in Richmond earlier…
Læs mereNewport News, Va. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Grissom Library in Newport News. RSVP by emailing event host Stacey Neathery. You can also download this flyer to learn more about both this event, and an in-person Meet & Greet happening in Richmond earlier the same day.
Læs mere15. juni 2024: In-Person Meet & Greet i Richmond, Va.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at East End Branch of the Richmond Public Library (1200 N. 25th Street). RSVP by emailing event host Stacey Neathery. You can also download this flyer to learn more about both this event, and an in-person Meet & Greet happening…
Læs mereRichmond, Va. Meet & Greet
Deltag og lær af andre, der forstår FTD-rejsen, ved denne personlige AFTD Meet & Greet-begivenhed i East End Branch af Richmond Public Library. RSVP ved at sende en e-mail til begivenhedsværten Stacey Neathery. Du kan også downloade denne flyer for at lære mere om denne begivenhed, samt en personlig Meet & Greet-happening...
Læs mere19. juni 2024: New York City Virtual Meet & Greet
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for New York City residents, taking place Wednesday, June 19, from 6:00 to 7:30 p.m. To RSVP and obtain the Zoom link, send an email to event host Sam Given at samgivensing@gmail.com. You can also download this…
Læs mereNew York City Virtual Meet & Greet
Deltag og lær af andre, der forstår FTD-rejsen ved denne virtuelle AFTD Meet & Greet-begivenhed for New York City-beboere, der finder sted onsdag den 19. juni kl. 18:00. For at svare og få Zoom-linket, send en e-mail til begivenhedens vært Sam Gives på samgivensing@gmail.com. Du kan også downloade denne flyer til...
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