29 czerwca 2024 r.: osobiste spotkanie i powitanie w Palos Verdes Estates w Kalifornii.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in the beautiful Palos Verdes Estates, Calif., on Saturday, June 29, starting at 9:30 a.m. PT. The event will take place at the Neighborhood Church of Palos Verdes (415 Paseo Del Mar). RSVP by emailing AFTD volunteer…
Czytaj więcejPittsburgh, Pensylwania. Wirtualne spotkanie i powitanie
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in the Pittsburgh, Pa. area on Monday, July 15. RSVP by emailing event host Janet Freburger at janet.freburger@gmail.com. You can also download this flyer to learn more.
Czytaj więcejPalos Verdes Estates, Kalifornia. Spotkania i powitania
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in the beautiful Palos Verdes Estates, Calif., on Saturday, June 29. RSVP by emailing AFTD volunteer Stuart at stuart.ftdvolunteer@gmail.com. You can also download this flyer to learn more about this event.
Czytaj więcejPersonel AFTD i Emma Heming Willis upamiętniają uchwałę tygodnia FTD w Kalifornii.
(pictured above, L-R: FTD advocate Wanda Smith, Calif. Assemblymember Brian Maienschein, AFTD CEO Susan L-J Dickinson, FTD advocate Emma Heming Willis, Calif. State Sen. Brian Jones) AFTD staff traveled to Sacramento to join Emma Heming Willis, Wanda Smith, and other FTD advocates at the State Capitol on May 30 to commemorate the adoption of a…
Czytaj więcejMind Matters: Obiad i nauka świadomości mózgu
On June 26 from 12:00-1:00 PM PST, AFTD volunteer Joanne Linerud is joining the Alzheimer’s Association to present a virtual event to help those in Washington state affected by FTD learn more about the disease, available supports, and local resources. The session will also provide information on differentiating between FTD and Alzheimer’s. Read the downloadable…
Czytaj więcejFilmy z sesji są już dostępne podczas konferencji edukacyjnej AFTD 2024
Videos from the AFTD 2024 Education Conference are now available on AFTD’s YouTube channel. Whether you were unable to join us in Houston or online, or simply want to watch a presentation you missed, you can now watch a range of sessions highlighting the lived experience of FTD, the latest updates on research, and other important…
Czytaj więcejPierwsza uchwała stanu Kalifornia dotycząca świadomości zwyrodnienia czołowo-skroniowego przyjęta na Kapitolu stanu przez Zgromadzenie i Senat
Emma Heming Willis Joins The Association for Frontotemporal Degeneration at California’s Capitol to Mark Watershed Moment in Dementia Awareness SACRAMENTO, CA. – On Thursday, The Association for Frontotemporal Degeneration (AFTD) and Emma Heming Willis, wife of actor Bruce Willis, joined state lawmakers to mark California’s first resolution in support of Frontotemporal Degeneration Awareness (FTD) Week.…
Czytaj więcejPassage Bio podkreśla obiecujący postęp badań klinicznych w kwartalnej aktualizacji
Biopharmaceutical company Passage Bio highlighted promising progress in its phase 1/2 clinical trial for a form of genetic FTD in a recent quarterly update. Passage Bio’s upliFT-D trial is evaluating PBFT02, an experimental gene therapy for FTD caused by mutated variants of the GRN gene that can create an inability to produce the protein progranulin,…
Czytaj więcejFTD i ALS: wspólne podejście do diagnozy i opieki
Znamy kilka genów, które mogą powodować dziedziczne FTD, ALS i ALS z FTD, przy czym najczęstszym jest C9orf72. Jednak genetyka nie jest pełną historią, ponieważ schorzenia te mogą pojawić się bez znanej przyczyny genetycznej. Podczas tego seminarium internetowego AFTD Healthcare Professional neurolodzy ze szpitala Massachusetts General Hospital specjalizujący się w FTD i ALS będą…
Czytaj więcejAdvancing Hope: AFTD uczestniczy w dorocznym spotkaniu Target ALS w 2024 r
AFTD attended the 2024 Target ALS Meeting on May 7-9 in Boston, Massachusetts. There were over 800 people who attended the meeting in-person or virtually. Attendees were comprised of scientific stakeholders from academia, industry, venture capital firms, nonprofit organizations and individuals with lived experience of the disease. Researchers utilized the forum to share scientific breakthroughs…
Czytaj więcej
Polish 
English 
Spanish (Mexico) 
French 
German 
Swedish 
Portuguese 
Italian 
Dutch 
Danish 
Spanish (Spain)