Sessões de discussão da Conferência de Educação AFTD 2019

LosAngeles

Clinical Issues (1:15 p.m.)

Gerenciando Variantes Comportamentais FTD
Chuang-Kuo Wu, MD, PhD
Marianne Sanders, RN
Amy e George Shives
Jill Shapira, PhD, RN, facilitadora

Explore behavioral variant FTD from four distinct and complementary perspectives – from the clinical
perspective, a care-and-support perspective, and from a person diagnosed and care partner.

Gerenciando a afasia progressiva primária
Ahmad Sajjadi, MD
Maura Silverman, MS, CCC/SLP
Tracey Lind e Emily Ingalls
Mary O'Hara, facilitadora

Explore PPA from four distinct and complementary perspectives – from the clinical perspective, a care-and support perspective, and from a person diagnosed and care partner.

Gerenciando ALS/FTD e Distúrbios do Movimento
Gabriel Leger, MD
Jamie Fong, CGC
Miki Paul, PhD
Debra Niehoff, PhD, facilitadora

Explore os desafios físicos e cognitivos de ALS/FTD, paralisia supranuclear progressiva e degeneração corticobasal de perspectivas clínicas, genéticas e de cuidados.

Care Strategies (2:50 p.m.)

O médico acha que é FTD. O que agora?
Christy Turner, CDP, CDCM, CCSI
Marianne Sanders, RN

For those who are facing a new diagnosis, this session will help you understand FTD and start planning for care.

Desenvolvimento de equipes e ferramentas de comunicação
Maura Silverman, MS, CCC/SLP

Having PPA does not mean you have nothing to say. This session will focus on finding alternative means of communicating when language is lost.

Desenvolvimento de Estratégias Ambientais e Comportamentais
Jill Shapira, PhD, RN, Sue Hirsch, MA, and Sandi Grow, RN, AFTD Partners in FTD Care Advisors

This session will demonstrate how to use a problem-solving approach to develop creative and individualized strategies to address challenging behaviors due to FTD.

Perda e luto em FTD
Bridget Moran-McCabe, MPH, AFTD
Elaine Rose, Voluntária da AFTD

A experiência da perda e do luto é complicada. Esta sessão discutirá como lidar com essa experiência única e pessoal.

Adaptando-se ao FTD: uma discussão para pessoas que vivem com FTD
Matt Sharp, MSS, AFTD
Amy Shives, médica

This session will feature a panel of people living with FTD discussing how to compensate and overcome challenges in daily life. This session is led by and is for people living with the disease. Any care partners who attend will be asked to listen rather than speak.

Open Q&A and Networking (4:00 p.m.)

Fórum para Jovens Adultos
Gabriel Leger, MD
Jamie Fong, CGC
Elivra Jimenez, PhD
Mary O’Hara, LCSW, facilitator

If you’re in your 20’s or 30’s and have a family member diagnosed with FTD, you’re bound to have questions. Here’s an opportunity to interact with experts as well as peers with similar concerns.

Fórum para Parceiros de Cuidados
Chuang-Kuo Wu, MD, PhD
Mary Austrom, PhD
Maura Silverman, MS, CCC/SLP
Jill Shapira, PhD, RN, facilitadora

There’s never enough time to talk with professionals who have expertise in FTD. This session offers care partners an additional opportunity to ask your questions and hear the concerns of peers.

Fórum para pessoas que vivem com FTD
Kimiko Domoto-Reilly, MD
Ahmad Sajjadi, MD
Marianne Sanders, RN
Matt Sharp, MSS, facilitador

Come ask professional FTD experts your questions. This session offers people living with a diagnosis an opportunity to meet with medical, research and dementia experts to discuss questions and care needs.

Envolvimento com AFTD para profissionais de saúde
Sharon Denny, MA, facilitator

Learn about how AFTD can support your work with people with FTD and their families, and join us to continue to increase awareness of FTD, shorten time to diagnosis and improve the quality of care available.

Encontre ajuda, compartilhe esperança: o poder de contar histórias nas mídias sociais
Lauren Gauthier and Bridget Graham, facilitators

Join AFTD’s Online Community Coordinator and Special Events Manager to explore how you can leverage social media to increase awareness and understanding of FTD.

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