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A Song for Mom, by LJ Miller
LJ began to wonder why she and her mom were growing apart. Always a phone call away, and a patient listener, mom seemed distant, uninterested, and negative. Not a kid…
Radio show features FTD Awareness
Frontotemporal Dementia: What you need to know about FTD is the title of the September 26, 2009 radio broadcast of The Medical View on WWDB in Philadelphia. The show features…
I’ll Take It, by Dolly Barr
Robert E. Barr had a Masters Degree and Honorary Doctorate of Christian Service. He worked as a minister and hospital chaplain in Oklahoma City, Oklahoma for over 45 years, and…
Daggers in My Heart, by Kayla Winters
Kayla’s grandfather was affected by FTD throughout her life. In this essay she describes travelling through the stages of his illness together with her family. At 16 she faces a…
AFTD News: Summer 2009, Volume 6, Issue 2
In this issue: AFTD’s Annual Meeting Showcases Year in Review, New Members of Board of Directors and Medical Advisory Council, NY Medical Centers Form Consortium, Caregiver Respite Grants, Strategic Analysis…
A Mother’s Search for Meaning, by Jeanine Gierke
When Jeanine’s son Bryan died, he was just 31, with a young wife and infant daughter. He had been diagnosed with FTD two years before. Here, Jeanine writes of the…
New edition of “What If It’s Not Alzheimer’s?” now available
New edition of “What If It’s Not Alzheimer’s? A caregiver’s guide to dementia” is now available. Copies can be obtained on line through major retailers (such as www.Amazon.com or www.bn.com).
AFTD News: Spring 2009, Volume 6, Issue 1
In this issue: 2009 Drug Discovery Awards announced, Medical Advisory Council Update- The importance of biomarkers, Advocacy update, New AFTD Respite Grants, Fundraiser success stories. LINK: AFTD News Spring 2009
Lewy Body Dementia: Different Disease, Similar Heartache, by Debbie Fields
Debbie’s mom, Louise Gallagher, was 70 years old, just newly retired when she was diagnosed with Lewy Bodies Dementia in 2003. She died March 14, 2008. Debbie writes of the…
My Husband’s Gift, by Kitty Roth
One woman’s account of the “special time” she shared with her husband who was diagnosed with FTD at the age of 55. The beautiful yet simple art they created together…
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