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AFTD CEO Talks World FTD Awareness Week on “Rodger That” Podcast
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AFTD CEO Susan L-J Dickinson, MSGC, joined the hosts of the Rodger That podcast for its 100th episode to discuss FTD and the organization’s awareness efforts. “FTD is the most common dementia for people under the age 60. Most people…
Australian Couple Share their FTD Story for World FTD Awareness Week 2021
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Mark Ferguson and his wife Jill, who is living with primary progressive aphasia (PPA), shared their story of being impacted by FTD with their local FTD research clinic. The FRONTIER FTD Research Clinic, part of the University of Sydney’s Brain…
NY State Sen. Hinchey to Host Virtual Event for World FTD Awareness Week
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New York State Senator Michelle Hinchey is hosting a virtual information session in partnership with AFTD to help raise FTD awareness during World FTD Awareness Week. The information session, happening via Facebook Live on Oct. 1 at 11:00 a.m. EDT,…
World FTD Awareness Week 2021
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This World FTD Awareness Week, World FTD United is working to make sure that FTD stories from around the globe become part of a Global Conversation on FTD, designed to raise public awareness and foster connection and hope for all…
World FTD Awareness Week 2021
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Join a Global Conversation on FTD Wherever we live, we all have an FTD story to tell. This year your story can be part of a global conversation on FTD! Share a 1-2 minute video submission to become a part…
World FTD Awareness Week 2020
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World FTD Awareness Week, a week of events, activism and engagement, is organized each year by World FTD United, an international coalition of which AFTD is a member. This year, World FTD Awareness Week will be highlighted by the daylong…
World FTD Awareness Week 2019
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World FTD Awareness Week, a week of events, activism and engagement, is organized each year by World FTD United, an international coalition of which AFTD is a member. For World FTD Awareness Week 2019, tell the world your FTD story. Use…
World FTD Awareness Week
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World FTD Awareness Week, a week of events, activism and engagement, is organized each year by World FTD United, an international coalition of which AFTD is a member.
2018 World FTD Awareness Week: September 23- September 30, 2018
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World FTD Awareness Week, a week of events, activism and engagement, will begin this year on September 23, 2018. Stay tuned to the AFTD website for more information on specific events as the week draws nearer. Together, we can work to…
2017 World FTD Awareness Week: September 24-October 1, 2017
News Article
World FTD Awareness Week, a week of events, activism and engagement, will begin this year on September 24. Last year, World FTD Awareness Week was a huge success, with events taking place in many different states and countries. In 2017,…
Ottawa Radio Station 580 CFRA Promotes World FTD Awareness Week
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On October 10th, Ottawa radio station 580 CFRA hosted dementia advocate Matt Dineen on the program to raise FTD awareness. Matt’s interview is available here. The station also hosted FTD advocate Sue Gustafson, who described losing her husband to FTD…
First-ever World FTD Awareness Week Launches at One World Trade Center
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On October 1, AFTD, with President of Advance Publications, Inc. Donald Newhouse, convened supporters and community members to host an inaugural event at One World Trade Center. Together, we gathered to kick off U.S. participation in the first ever World FTD Awareness…
World FTD Awareness Week (Oct. 4-11, 2015) Social Media Kit
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AFTD’s Social Media Kit offers an easy way to tell your story during World FTD Awareness Week. Simply choose the template that suits you best: Social Media Template, for persons living with FTD Social Media Template, for caregivers Social Media Template, for…
AFTD Collaborates with Alector in Panel on Person-Centered Care
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AFTD Advocacy Manager Matt Sharp and AFTD Ambassador Deb Scharper participated in a panel discussion on person-centered care for persons with FTD, hosted by biopharmaceutical company Alector. The discussion, which took place during World FTD Awareness Week 2021, informed viewers…
AFTD Joins Wave Life Sciences for Food for Thought Event
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Biotechnology company Wave Life Sciences invited AFTD Fundraising Coordinator Brittany Andrews and AFTD Ambassador Corey Esannason to discuss FTD and its impact on families in a special Food for Thought event. Andrews and Esannason virtually convened with Wave staff on…
AFTD Staff and Volunteer Featured in “Caregiver Solutions” Show
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In a recent episode of the Caregiver Solutions Info show, AFTD staff joined host Marcia Teele to discuss World FTD Awareness Week and AFTD’s fall fundraising and awareness campaigns. AFTD Education Program Manager William Reiter and Fundraising Coordinator Brittany Andrews…
NY State Senator Hinchey and AFTD Raises FTD Awareness with Virtual Information Session
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In observation of World FTD Awareness Week 2021, New York state senator Michelle Hinchey joined AFTD Advocacy Manager Matt Sharp for an hour-long conversation on Facebook Live on Oct. 1. The conversation follows the recently adopted resolution, sponsored by Sen….
AFTD Awareness Ads Featured in the New York Times
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Throughout World FTD Awareness Week (Sept. 26-Oct. 3), the New York Times featured digital and print FTD-themed ads designed to bring FTD awareness to millions of Times readers, thanks to support from a generous AFTD donor. Today’s Sunday edition of…
Watch the Global Conversation on FTD!
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To mark World FTD Awareness Week 2021, AFTD has worked with the international coalition World FTD United to put together a Global Conversation on FTD. For this effort, AFTD and World FTD United called on people and families affected, health…
#FTDhotshotchallenge Makes a Fiery Return
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Dedicated AFTD volunteers are taking FTD awareness to a fiery level with the return of the #FTDhotshotchallenge. Back for its second year, the challenge engages individuals to film themselves drinking a shot of hot sauce, tag five friends, and donate…
Watch the Global Conversation on FTD this Saturday!
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To mark World FTD Awareness Week, World FTD United worked in partnership with FTD to convene voices from around the world for a Global Conversation on FTD – and AFTD invites you to watch the results this Saturday, October 2….
AFTD News: Summer 2021, Vol. 18, Issue 2
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In this issue: AFTD’s 2021 Education Conference Offers Resources, Support, Hope; ALLFTD Study Recruiting Participants to Help Further Understanding of FTD; Spotlight on… Rita Choula, AFTD Board of Directors; AFTD to Begin Strategic-Planning Process; AFTD Welcomes New Ambassadors; Finding Support…
Add Your Voice to a Global Conversation on FTD
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World FTD Awareness Week 2021 is fast approaching – it will be held September 26th through October 3rd. In collaboration with World FTD United, AFTD is working to make sure that FTD stories from around the globe become part of…
NY State Sen. Michelle Hinchey Introduces “FTD Awareness Week” Resolution
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New York state senator Michelle Hinchey delivers remarks on the Senate Floor while introducing a resolution, since adapted by the state, to proclaim September 26 through October 3, 2021, FTD Awareness Week in New York. Sen. Hinchey’s father, former U.S….
AFTD and ADDF Announce Four New Research Awards
News Article
AFTD and The Alzheimer’s Drug Discovery Foundation (ADDF) have awarded four new research grants, totaling $3.4 million, to advance the science of FTD and hasten the development of novel treatments. “This kind of commitment provides critical support for funding research…
A Week of Awareness…
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Grassroots volunteers and FTD experts from around the globe joined AFTD to mark World FTD Awareness Week 2020 (Sept. 27-Oct. 4) with a wide range of activities designed to raise awareness, share information, and raise funds to help hasten a…
Watch the 2020 World FTD Marathon…
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The first-ever World FTD Marathon, a day-long series of interactive webinars from around the globe, is now available to view in its entirety online — approximately 17 hours of FTD-focused content presented by persons diagnosed, researchers and current and former…
AFTD Highlights Mom’s Story in Latest N.Y. Times Awareness Ad
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The Sunday, October 4 issue of the New York Times features the story of Jennifer Lee, a woman living with FTD, in the latest in a series of FTD awareness ads to run in the Times. The ad, which appears…
Cranking Up the Heat: #FTDhotshotchallenge
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In its first week, the #FTDhotshotchallenge has raised over $22,000, as volunteers all over the world are raising FTD awareness by taking a shot of hot sauce and sharing the footage on social media. Today, we’re announcing that an anonymous…
AFTD and ADDF Announce Major New Investments in FTD Research
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AFTD and The Alzheimer’s Drug Discovery Foundation (ADDF) announced today four new research awards to scientists looking for novel ways to diagnose and treat FTD. The awards were announced this week to help mark World FTD Awareness Week 2020. “Our…
Members of AFTD Community Featured on Caregiver Solutions Show to Raise FTD Awareness
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Members of the AFTD community, including staff and a volunteer, were featured on the Caregiver Solutions Info Show to shed light on FTD and current awareness events. Hosted by Marcia Teele, the show provides information, advice, and support related to…
AFTD Awareness Ads Featured in New York Times Introduce #FTDhotshotchallenge
News Article
A recent set of awareness ads featured in the New York Times highlights the stories of families touched by FTD and introduce the #FTDhotshotchallenge. On Sunday, September 27, the print edition of the Times included a full-page ad, seen above….
World FTD Marathon 2020
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To mark World FTD Awareness Week 2020, AFTD and its fellow members of the World FTD United coalition will spread FTD awareness and information across the globe with the first-ever World FTD Marathon. AFTD is curating the North, Central and…
Join the World FTD Marathon…
News Article
World FTD Awareness Week 2020 (Sept. 27-Oct. 4) will be highlighted by the daylong World FTD Marathon on October 3. Presenters from around the globe will provide the latest information on FTD research and support, and share about the lived…
Maine Family to Host AFTD Food for Thought Campaign, Raise FTD Awareness
News Article
For the Beal family, AFTD’s Food for Thought campaign presents an opportunity to share their journey with FTD and raise awareness while (safely) enjoying food with friends and family. A grassroots fundraising and awareness campaign focusing on food and FTD…
AFTD News: Summer 2020, Vol. 17, Issue 2
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In this issue: COVID-19 and FTD Research: Challenges and Silver Linings; Zoey’s Extraordinary Playlist Brings FTD Awareness to National TV; Spotlight on… Aisha Adkins, FTD Caregiver; World FTD Awareness Week Begins Sept. 27; AFTD Sponsors Virtual Dementia Care Summit; A…
A Message from AFTD’s CEO
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I hope that this finds you and your family safe and connected during these last weeks of summer. We know that for many, the COVID-19 pandemic has brought new challenges. Stress and uncertainty are weighing on us differently these months….
COVID-19 and FTD
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As the local and national impact of COVID-19 (coronavirus) continues to evolve, we want for you to know that you aren’t alone. AFTD is here to help you navigate what we know is likely a challenging and stressful time. We…
AFTD News: Fall 2019, Vol. 16, Issue 3
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In this issue: AFTD and Target ALS Announce Partnership; Bringing Vital Perspective to Federal Research Grant Reviews…; Spotlight on… Ian R.A. Mackenzie, M.D., AFTD Medical Advisory Council; AFTD Medical Advisor Wins Breakthrough Prize; National Dementia Summit Scheduled for March 2020;…
AFTD Volunteer Discusses FTD Journey on Delaware Radio Station
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An AFTD volunteer discusses her family’s journey with FTD in an interview aired on the Delaware-based radio station WGMD during World FTD Awareness Week. In a conversation with WGMD’s Radio Free Delmarva host Duke Brooks, Gene Thornton details her husband…
AFTD Ad Featured in New York Times
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Timed for the start of World FTD Awareness Week, and funded by support from a generous donor, a full-page ad portraying the devastating impact of young-onset dementia on families is featured in the 9/22 issue of the New York Times….
AFTD News: Fall 2018, Vol. 15, Issue 3
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In this issue: World FTD Awareness Week 2018 Observed Around the Globe; Hope Rising 2018 Draws Record Crowd to Show Support for AFTD’s Mission; Spotlight on… David Pfeifer, AFTD Board of Directors; Congress Increases Funding for NIH Dementia Research in…
New FTD PSA Airs on 92.1 KKDV
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Last Monday, to mark World FTD Awareness Week 2018, 92.1 KKDV began airing a PSA about FTD — the most common form of dementia for people under 60 — thanks to the efforts of AFTD volunteer Patrick Gutierrez.
AFTD Volunteer Pens Delaware State News Op-Ed
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In honor of World FTD Awareness Week, AFTD volunteer Gene Thornton detailed her family’s FTD journey in the September 28 issue of Delaware State News. She wrote of her husband Donovan’s experiences as a resident of the Delaware Veterans Home….
AFTD Ad Featured in New York Times
News Article
Timed for the start of World FTD Awareness Week, and funded by support from a generous donor, a full-page ad promoting AFTD’s message of help and hope is featured in the 9/23 issue of the New York Times. Thanks to the…
World FTD Awareness 2018-19
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Telling the World About FTD Although FTD is the most common form of dementia for people under 60, far too few know about the challenges it brings for hundreds of thousands around the world. Together, beginning with World FTD Awareness…
AFTD News: Summer 2018, Vol. 15, Issue 2
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In this issue: Department of Defense to Offer Funding for FTD Research; Facebook Group Brings Help and Support; Spotlight on… Sandra Grow, AFTD Board of Directors; AFTD Co-Sponsoring Satellite Events at Society for Neuroscience Meeting; AFTD Volunteers Honored During National…
AFTD News: Fall 2017, Volume 14, Issue 3
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In this issue: Announcing the David Geffen Fund at AFTD; AFTD Study Shows Economic Burden of FTD; Money Well Spent: AFTD Pilot Grants; AFTD Nominee Joins Dementia Advisory Council; Columbia Trial on Behavioral Symptoms in FTD; FTSG Conference to Be…
Contribute Your FTD Story to the Upcoming National Dementia Summit
News Article
World FTD Awareness Week starts in less than one week — on 9/24! In the lead-up, AFTD would like to let you know about an important way you can share your perspective with federal policymakers and healthcare researchers. On October…
AFTD News: Fall 2016, Volume 13, Issue 3
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In this issue: Understanding the Social and Economic Impact of FTD; AFTD Pilot Grant Recipient Makes Headlines with Web-based Speech Language Therapy; Spotlight on Matt Hatfield; A Community for All Facing an FTD Journey; Benefit Brings Hope to the FTD…
AFTD Speaks to Kimberly Williams-Paisley About Her New Book
News Article
Kimberly Williams-Paisley’s new memoir, published earlier this month by Penguin Random House, has much to offer for anyone impacted by FTD. In this vivid, thoughtful book, Williams-Paisley describes her journey grappling with the changes that primary progressive aphasia (PPA) brings…
AFTD News: Fall 2015, Volume 12, Issue 3
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In this issue: Samuel I. Newhouse Foundation Supports $5.75M AFTD Biomarkers Initiative; AFTD Rolls Out Support Groups Initiative; Spotlight on Sue Laden; Save the Date: 2016 AFTD Education Conference; Ten Countries Make their Voices Heard During First World FTD Awareness…
Illinois Family to Host Event for Food for Thought 2021 Campaign
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An Illinois family will host a Food for Thought event at a local pizza eatery to raise critical FTD awareness in their community. The Kirby family will host the event in honor of Kara Kirby (pictured above), who was diagnosed with…
Help & Hope #77
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Issue #77: August 2021 In this issue you can get guidance in making the difficult decisions surrounding FTD and driving, prepare to get involved in AFTD’s 9th annual Food for Thought campaign or sign up for our 2021 Race Season,…
IBM Study Uses Writing Tests to Predict Onset of Neurological Diseases
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Researchers at IBM are using writing tests to analyze language and speech patterns in order to predict Alzheimer’s diagnoses, the New York Times reported in an article published February 1. Using an artificial intelligence (A.I.) program, IBM researchers conducted a…
Help & Hope #66
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Issue #66: September 2020 In this issue you can find out what’s in the works for World FTD Awareness Week 2020, learn what easing regulations might mean for visitation of your loved one in a facility, get information about a…
Food for Thought 2020
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Food for Thought is a grassroots fundraising and awareness campaign focusing on food and FTD education. Held the last week of September through the first week of October, FFT encompasses World FTD Awareness Week. During this time, people across the…
Food for Thought 2019
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Food for Thought is a grassroots fundraising and awareness campaign focusing on food and FTD education. Held the last week of September through the first week of October, FFT encompasses World FTD Awareness Week. During this time, people across the…
The Cruelest Disease You’ve Never Heard Of: Frontotemporal Dementia
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Understanding is growing that not all dementia is Alzheimer’s. However, too few realize today that dementia can impact younger adults. FTD, also known as frontotemporal dementia, frontotemporal degeneration or Pick’s disease, is the most common dementia diagnosed before age 60….
Food for Thought 2018
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Food for Thought is a grassroots fundraising and awareness campaign focusing on food and FTD education. Held the last week of September through the first week of October, FFT encompasses World FTD Awareness Week. During this time, people across the…
Food for Thought
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Although frontotemporal degeneration (FTD) is a devastating disease for all whose lives it touches, it remains far too little known and poorly understood. If you would like to help to change that, AFTD’s Food for Thought campaign is for you….
Host an Event
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What is the AFTD-Team? The AFTD-Team is made up of every volunteer who works to help raise FTD awareness, and all of the dedicated Grassroots Event (GRE) Hosts who raise funds to ensure help and support for families, as well…
Messages of Hope
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We are better together. #MessagesOfHope #FTD #DementiaUnder60 #ThinkFTD #endFTD #dementia #raredisease #AFTD #FindHelpShareHope #findhelp #sharehope #help #hope #bettertogether #together #togetherisbetter #youarenotalone #notalone #strengthinnumbers #quote #quoteoftheday #inspire #inspiration #inspirational #encourage #encouragement #encouraging #wise #wisdom #wordsofwisdom #WorldFTDAwarenessWeek
Messages of Hope
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#MessagesOfHope #FTD #ThinkFTD #EndFTD #WorldFTDAwarenessWeek #DementiaUnder60 #dementia #raredisease #AFTD #findhelpsharehope #help #hope #resilience #resilient #determination #determined #japaneseproverb #proverb #wisdom #wordsofwisdom #quoteoftheday FTD
Featured Studies
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Participating in research can bring new ways to help families today, and build hope for a future without this disease. You may choose to find out more about the following featured studies: Efficacy of the WeCareAdvisor: An Online Tool to…