On June 11, 2024, AFTD collaborated with the University of Pennsylvania Frontotemporal Degeneration (FTD) Center on the FTD Clinical Research Learning Institute (CRLI) Research Ambassador Program, a one-day virtual FTD workshop. The CRLI curriculum was adapted from the Northeast ALS Consortium (NEALS) program which was designed to empower people living with ALS and their loved ones with essential knowledge about clinical research. FTD CRLI Research Ambassadors were selected from a large pool of applicants to represent the breadth of FTD experiences. The FTD CRLI program included sessions on FTD drug development and clinical trials, ethics and informed consent, study design and statistics, how to read research papers, personal experiences with research, and FTD advocacy.

Ambassadors will have future opportunities to participate in initiatives that influence and improve the FTD research process.

Learn More About ALS CLRI

Learn More About Penn FTD Center