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Personal Stories
Husband with FTD, Mistaken for Having Midlife Crisis, Profiled in UK Newspaper
A UK-based newspaper highlighted persons impacted by FTD, including one man living with FTD who many believed…
Spotlight on… Amy Shives, AFTD’s Persons with FTD Advisory Council
Amy Shives had one mission for this year’s upcoming AFTD Education Conference: To ensure that the voices,…
Spotlight On…Laura and Sarah Silver
The adage “a picture is worth a thousand words” holds more truth than cliché for mother-daughter duo…
Spotlight on… Steve Perlis, AFTD Persons with FTD Advisory Council
In 2018, Steve Perlis talked himself out of being a spokesperson for persons diagnosed with FTD, reluctant to be considered the “poster…
Spotlight on… Anne Fargusson, AFTD Persons with FTD Advisory Council
It’s been nearly two decades since Anne Fargusson started feeling the effects of FTD. Today, she is…
Mother-Daughter Pair Discuss Genetic FTD with BBC
A recent article in BBC News profiled a mother living with FTD and her daughter who is…
Persons with Dementia Share Stories of Their Pre-Diagnosis Symptoms
Several persons diagnosed with early-onset dementia recount their stories of first noticing their symptoms in a recently…
Stories of FTD Genetics Featured in “Brain & Life” Magazine
Brain & Life magazine recently told the stories of two people whose lives have been affected by FTD, and who participated in the March 5…
AFTD Founding Board Member Talks about Creation of FTD Caregiver Resource Book
AFTD founding Board member Lisa Radin shared her journey of being an FTD caregiver during Massachusetts General Hospital’s “Community…
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