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Personal Stories
Spotlight on… Helen-Ann Comstock, AFTD Founder and Board Member
Helen-Ann Comstock officially founded AFTD two decades ago, but the seeds for the organization were planted many…
Helping Others Find Hope for the FTD Journey
Robert “Bob” Tarpley, who is 55 years old and living with behavioral variant FTD, was working as…
AFTD Ambassador Shares FTD Information, Experiences on Facebook Live
AFTD Ambassador Jerry Horn recently took part in a Facebook Live event hosted by the E.A. Roberts…
Karate Black Belt Shares His Experiences with Motor Neuron Disease
A karate ace in the UK shared his experiences of wanting to help people and stay active…
Finding Inclusive Dementia Care Remains a Challenge for LGBTQIA+ Community
An article published by Xtra Magazine illustrated the difficulties that members of the LGBTQIA+ community experience when…
Care Partner Shares How Cultural Disconnect Makes Dementia Care Harder for AAPI Community
A recent article in Northwest Asian Weekly highlights how a disconnection between care infrastructure and culture can…
AFTD Ambassador Highlights Difficulties in Getting an FTD Diagnosis
AFTD Ambassador Deb Scharper shared the difficulties that she faced trying to get an accurate FTD diagnosis…
Dementia Advocate Highlights Disproportionate Burden of Caregiving for Black Women
Dementia advocate and thought leader Aisha Adkins wrote recently on the disproportionate burden that Black women face…
Couples Living with PPA Featured in Wisconsin Newspaper
Two couples living with primary progressive aphasia (PPA) share their experiences of managing the disease and the…
Activist Living with FTD Discusses Dementia Advocacy in Asia in “Being Patient” Interview
Emily Ong, who lives with FTD, discussed her efforts to combat the challenges of dementia advocacy in…
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