Maximizing Communication, Maintaining Connection:
Person-Centered Care for Primary Progressive Aphasia

Free CEU available for nurses, social workers, and allied health professionals!

Primary progressive aphasia (PPA) is a clinical neurodegenerative dementia syndrome, which can be caused by Alzheimer’s disease or frontotemporal degeneration. The progressive loss of language experienced by those with PPA negatively impacts communication and quality of life. This webinar will describe clinical features of PPA, its progression, and impact on everyday life. It will also include an overview of the neurodegenerative etiologies and provide person- and family-centered approaches to maximize communication, connection, and quality of life among persons living with PPA and their caregivers over the course of the illness.


Objectives

  • List at least two symptoms common to PPA.
  • Recognize three practical ways these symptoms impact communication between a person with PPA and a caregiver.
  • Describe three effective person- and family-centered approaches to maximize communication and minimize frustration. 

Content for this AFTD Educational Webinar is targeted to nurses, social workers, and other health professionals. Persons diagnosed with FTD and their family members are welcome to join. This webinar will be recorded and archived on AFTD’s YouTube page.

Continuing education credits are available only to those who attend the live program. 

Emily Rogalski, PhDis the Ann Adelman Perkins and John S. Perkins Professor of Alzheimer's Disease Prevention at Northwestern University’s Feinberg School of Medicine. She is a clinical and cognitive neuroscientist and currently serves as Associate Director of the Mesulam Center for Cognitive Neurology and Alzheimer Disease and as Imaging Core Leader of Northwestern’s NIA-funded Alzheimer’s Disease Research Center. Her research falls under the broad umbrella of aging and dementia. Using a multimodal approach, she focuses her investigations on two aging perspectives: primary progressive aphasia (PPA) in which neurodegenerative disease invades the language network and SuperAging in which individuals are seemingly resistant to the deleterious changes in memory associated with “normal” or more typical cognitive aging. Her PPA research focuses on characterizing the clinical and anatomical features of PPA, drivers of disease progression, identifying risk factors, and refining our understanding of language network organization. She has also pioneered a line of intervention research concentrated on maximizing care and quality of life for individuals living with PPA.  

 

Darby Morhardt, PhD, LCSW is Associate Professor in the Cognitive Neurology and Alzheimer’s Disease Center (CNADC) and Department of Preventive Medicine, Northwestern University Feinberg School of Medicine. She is director of the CNADC’s Outreach and Recruitment Core, the Miller Alzheimer’s Family Support Program, as well as clinical social work services for the Northwestern Medicine Neurobehavior and Memory Clinic. The focus of her work has been on the impact of cognitive impairment on the individual, family and their social networks. Areas of clinical research include the experience of families living with Alzheimer’s and non-Alzheimer’s dementia; the process of tailoring care to specific needs and dementia symptoms; and the development and evaluation of quality-of-life enrichment programs, support groups and other therapeutic interventions. She is responsible for organizing the CNADC’s community education and outreach programs throughout Chicago and has worked to build community-academic research partnerships with the African-American community and many limited English-proficiency communities. 

Accreditation Statement:
In support of improving patient care, Rush University Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

This activity is being presented without bias and without commercial support.

Credit Designation Statements:
Rush University Medical Center designates this live activity for a maximum of 1.0 nursing contact hour(s).

Rush University is an approved provider for physical therapy (216.000272), occupational therapy, respiratory therapy, social work (159.001203), nutrition, and speech-audiology by the Illinois Department of Professional Regulation.

Rush University designates this live activity for a maximum of 1.0 continuing education credits for physical therapists, occupational therapists, respiratory therapists, social workers, nutritionists, speech pathologists, audiologists, and/or psychologists.