Externally Led Patient Focused Drug Development Meeting

Externally Led Patient-Focused Drug Development Meeting

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Make your voice heard: On March 5, 2021 AFTD will host a virtual Externally Led Patient-Focused Drug Development meeting with representatives of the U.S. Food and Drug Administration.

Since 2013, the FDA has used Patient-Focused Drug Development meetings to better understand diseases like FTD.

People with FTD and anyone whose life has been personally affected by this disease are encouraged to participate live on March 5, via live polls, chat and phone-in.

Please let us know if you would like to be part of this meeting by completing our event’s RSVP form today.

By making your voice heard, you can inform the FDA’s understanding of FTD symptoms, and better understand the priorities of families for research to develop treatments targeting this disease.

Take the FTD Insights Survey

We hope you have had an opportunity to take the FTD Insights Survey developed by AFTD and the FTD Disorders Registry, as all responses received this month will be used to shape our Patient-Focused Drug Development meeting’s agenda. The survey is open to all who are living with an FTD diagnosis, to current family caregivers, former caregivers, and to people at risk of FTD, in the U.S. or Canada. Please note that all forms of FTD are included in our survey, including bvFTD, PPA, PSP, CBS, and FTD-ALS. If you have not had a chance, please take the survey below.


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Join the FTD Disorders Registry

You can play an ongoing role in advancing the science and moving us faster toward finding treatments and cures for FTD by participating in the FTD Disorders Registry. FTD-diagnosed persons, their caregivers, family members, and friends can join and share their story. To learn more, please visit FTD Disorders Registry website, or join the Registry below.


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